Behavioral Problems, Quality of Life and Caregiver Burden in Children with Idiopathic Nephrotic Syndrome: Improving

Janaki Menon1, Nithya Thuruthiyath2, Anugraha Kannankulangara2

  • 1Department of Pediatrics, Government Medical College, Thrissur, Kerala, India. janakimenon@hotmail.com.

Indian Journal of Pediatrics
|September 23, 2020
PubMed

Insights

Behavioral problems in children with nephrotic syndrome are comparable to controls, but severe complications and drug effects are linked to issues. Quality of life remains unaffected with proper support.

Area of Science:

  • Pediatric Nephrology
  • Child Psychology
  • Quality of Life Studies

Background:

  • Idiopathic nephrotic syndrome (INS) is a significant childhood kidney disease.
  • Understanding the behavioral impact and quality of life in children with INS is crucial for comprehensive care.

Purpose of the Study:

  • To investigate the prevalence and patterns of behavioral abnormalities in children with INS.
  • To assess the quality of life (QOL) of children with INS and their caregivers.
  • To identify factors associated with behavioral problems and QOL.

Main Methods:

  • Cross-sectional questionnaire-based study.
  • Involved 38 children diagnosed with idiopathic nephrotic syndrome.
  • Behavioral problems and Quality of Life (QOL) were assessed using standardized tools.

Main Results:

  • Behavioral problems were comparable to controls, except in the conduct domain.
  • Severe disease complications and adverse drug effects were significantly associated with abnormal behavior.
  • Quality of life (QOL) for both children and caregivers appeared unaffected by the illness.

Conclusions:

  • Behavioral issues in childhood nephrotic syndrome can be mitigated through regular follow-up and caregiver support.
  • Children with INS and their caregivers can maintain a good QOL, even in resource-limited settings, with adequate psycho-social support.

Related Concept Videos

Nephrotic Syndrome III : Nursing Management01:24

Nephrotic Syndrome III : Nursing Management

Nursing management for nephrotic syndrome adapts as the disease progresses, with strategies evolving to address advancing symptoms and complications.Early-Stage Management In the early stages, nursing interventions for nephrotic syndrome resemble those used in managing acute glomerulonephritis, focusing on symptom monitoring, fluid balance, and managing mild to moderate edema.Vital Signs: Regularly monitor blood pressure, pulse, respiratory rate, and temperature to promptly identify...
181
Nephrotic Syndrome II : Assessment and Medical Management01:26

Nephrotic Syndrome II : Assessment and Medical Management

IntroductionNephrotic syndrome is a kidney disorder marked by excessive protein loss in the urine, leading to various systemic complications. This condition often results from damage to the glomeruli—the kidney's filtering units—causing proteinuria, low blood protein levels, and fluid retention. Understanding the assessment, diagnosis, and management of nephrotic syndrome is essential for effective treatment and prevention of further kidney damage.AssessmentPatient History: Document...
112
Chronic Kidney Disease III: Interprofessional Care01:28

Chronic Kidney Disease III: Interprofessional Care

Chronic kidney disease (CKD) requires collaborative and comprehensive management. CKD progresses through stages and can lead to end-stage kidney disease (ESKD) if untreated. Interprofessional collaboration and patient education are crucial, enabling patients to manage their health and improve their quality of life.Diagnostic approach for chronic kidney diseaseThe diagnosis of CKD primarily focuses on the glomerular filtration rate (GFR), which assesses kidney function by measuring how well...
242
Chronic Kidney Disease IV: Nursing Management01:18

Chronic Kidney Disease IV: Nursing Management

Nursing management is essential for preventing complications, maintaining stability, and improving patients' quality of life in chronic kidney disease (CKD). By using a structured approach, nurses help slow CKD progression and support effective patient care​.1. Comprehensive patient assessmentEffective management begins with nurses reviewing the patient’s medical history, and identifying key risk factors like diabetes, hypertension, and nephrotoxic drug use. Nurses assess signs of...
189
Nephrotic Syndrome I : Introduction01:24

Nephrotic Syndrome I : Introduction

Nephrotic Syndrome is a chronic kidney disorder defined by clinical findings such as severe proteinuria, hypoalbuminemia, hyperlipidemia, and edema. These symptoms result from damage to the glomeruli, the kidney’s filtering units, increasing their permeability to proteins.Definition and Meaning:Proteinuria, defined as the loss of more than 3.5 grams of protein per day in adults, is a crucial feature of nephrotic syndrome. This condition is often accompanied by edema, the accumulation of...
314
Kidney Transplant III: Nursing Management01:16

Kidney Transplant III: Nursing Management

Postoperative Nursing Management for Kidney Transplant PatientsPostoperative nursing management care includes monitoring the surgical site, encouraging early movement, and promoting lung health through breathing exercises. Nurses also administer prescribed medications like H2-blockers, such as famotidine, or proton pump inhibitors, like omeprazole, to help prevent gastrointestinal ulcers and bleeding. Fungal infections in the mouth and bladder can result from immunosuppressive and antibiotic...
216