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Published on: August 25, 2014
Behavioral Problems, Quality of Life and Caregiver Burden in Children with Idiopathic Nephrotic Syndrome: Improving
Janaki Menon1, Nithya Thuruthiyath2, Anugraha Kannankulangara2
1Department of Pediatrics, Government Medical College, Thrissur, Kerala, India. janakimenon@hotmail.com.
Insights
Behavioral problems in children with nephrotic syndrome are comparable to controls, but severe complications and drug effects are linked to issues. Quality of life remains unaffected with proper support.
Area of Science:
- Pediatric Nephrology
- Child Psychology
- Quality of Life Studies
Background:
- Idiopathic nephrotic syndrome (INS) is a significant childhood kidney disease.
- Understanding the behavioral impact and quality of life in children with INS is crucial for comprehensive care.
Purpose of the Study:
- To investigate the prevalence and patterns of behavioral abnormalities in children with INS.
- To assess the quality of life (QOL) of children with INS and their caregivers.
- To identify factors associated with behavioral problems and QOL.
Main Methods:
- Cross-sectional questionnaire-based study.
- Involved 38 children diagnosed with idiopathic nephrotic syndrome.
- Behavioral problems and Quality of Life (QOL) were assessed using standardized tools.
Main Results:
- Behavioral problems were comparable to controls, except in the conduct domain.
- Severe disease complications and adverse drug effects were significantly associated with abnormal behavior.
- Quality of life (QOL) for both children and caregivers appeared unaffected by the illness.
Conclusions:
- Behavioral issues in childhood nephrotic syndrome can be mitigated through regular follow-up and caregiver support.
- Children with INS and their caregivers can maintain a good QOL, even in resource-limited settings, with adequate psycho-social support.
Abstract:
A cross-sectional questionnaire-based study was conducted on 38 children with idiopathic nephrotic syndrome. The prevalence and pattern of behavioral abnormalities was studied. Except in the conduct domain, the prevalence of behavioral problems was comparable with controls. Severe complications of disease and adverse drug effects were significantly associated with abnormal behavior. The Quality of life (QOL) of these children and their caregivers was assessed. It appeared to be unaffected by illness. Additional findings were high maternal literacy, no disruption of schooling, regular follow-up and good adherence to treatment. Behavioral problems in childhood nephrotic syndrome can be minimized by regular follow-up and supportive interventions to reduce caregiver burden. Such children and their caregivers can do well in terms of QOL, even in a resource-poor setting, with appropriate psycho-social support.
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