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Ethical considerations regarding the inclusion of children in nursing research
Aliza Damsma Bakker, René van Leeuwen1, Petrie Roodbol2
1174395Viaa Christian University of Applied Sciences, The Netherlands.
Insights
Including children in nursing research is vital for evidence-based practice, but raises ethical concerns. Continuous awareness and adherence to guidelines are crucial for ethical research with vulnerable pediatric populations.
Area of Science:
- Pediatric Nursing
- Bioethics
- Research Methodology
Background:
- Evidence-based nursing practice integrates research, patient preferences, and professional experience.
- Implementing evidence-based practice in pediatric nursing necessitates including children in research for interventions and preferences.
- Research involving children, a vulnerable group, presents unique ethical challenges.
Purpose of the Study:
- To identify and synthesize ethical considerations in pediatric nursing research.
- To explore the reasons behind these ethical issues and propose solutions.
- To examine ethical principles, particularly those from the Belmont Report, in the context of child research.
Main Methods:
- A systematic review of 21 studies was conducted.
- Analysis focused on ethical aspects including vulnerability, consent, research design (quantitative/qualitative), and study execution.
- Ethical considerations were examined through the lens of the Belmont Report's principles.
Main Results:
- Key ethical issues identified include vulnerability, informed consent processes, and methodological considerations for research with children.
- Studies highlighted the need for careful planning and execution to protect child participants.
- The review found that ethical considerations are often treated as procedural rather than an ongoing attitudinal process.
Conclusions:
- Ethical research with children requires continuous awareness and a proactive attitude from researchers.
- Existing international guidelines provide a framework, but their application demands careful consideration of individual study contexts.
- Prioritizing ethical conduct ensures the protection of vulnerable pediatric populations in nursing research.
Abstract:
Evidence-based nursing practice is based on three pillars: the available research, known preferences of the patient or patient group and the professional experience of the nurse. For all pillars, research is the tool to expand the evidence we have, but when implementing evidence-based practice in paediatric nursing two of the pillars demand that children are included as respondents: practice research on the nursing interventions in paediatrics and the preferences of patients, something recognized by scholars and practitioners. But including a vulnerable group as children in nursing research raises specific ethical issues that need to be considered by researchers. What are ethical considerations that are currently raised about doing research with children and what do we learn by synthesizing the narrative of these studies of why the issues are raised and which solutions can be offered for these issues? In this article, considerations on three ethical principles according to the Belmont report are described by examining recent research. Twenty-one studies were found addressing relevant ethical aspects including vulnerability, gaining consent, designing quantitative or qualitative research methods and considerations regarding the execution of the study. Ethical considerations should be much more a case of continuous awareness and attitude, then box-ticking exercise, although there are sufficient international guidelines available specifically for research that includes children to aid researchers.
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