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Sharing Ethics Consultation Notes With Patients Through Online Portals
Dominic R Mangino1, Marion Danis2
1Postbaccalaureate fellow in the Department of Bioethics at the Clinical Center of the National Institutes of Health in Bethesda, Maryland.
AMA Journal of Ethics
|October 3, 2020
Summary
This article explores sharing ethics consultation notes via patient portals. It argues for sharing, citing patient access rights and potential for improved understanding of clinical ethics.
Area of Science:
- Medical Ethics
- Health Informatics
Background:
- Online patient portals are common, increasing patient access to health records.
- Clinicians, especially in sensitive fields like mental health, adapt note-writing for patient readership.
- Ethics consultation notes are increasingly accessible through these portals.
Purpose of the Study:
- To discuss the ethical considerations of sharing ethics consultation notes with patients via online portals.
- To explore practical challenges in implementing such a policy.
- To advocate for the sharing of these notes.
Main Methods:
- Review of existing patient rights to health record access.
- Ethical analysis of sharing sensitive consultation information.
- Discussion of practical implementation strategies.
Main Results:
- Sharing aligns with patients' right to access their health records.
- Access to notes can enhance patient understanding of clinical ethics.
- Practical challenges can be managed through careful implementation.
Conclusions:
- Sharing ethics consultation notes through patient portals is ethically justifiable.
- This practice can empower patients and improve their comprehension of medical ethics.
- Addressing implementation challenges is key to successful adoption.
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