The Impact of Cancer on Early Childhood Development: A Linked Data Study

Julia N Morris1, David Roder2, Deborah Turnbull3

  • 1Behavioural Research and Evaluation Unit, Cancer Council South Australia.

Insights

Childhood cancer survivors showed increased developmental vulnerability in physical health. Remoteness appeared protective for developmental outcomes, highlighting the need for targeted support for these children.

Area of Science:

  • Pediatric oncology
  • Developmental psychology
  • Public health

Background:

  • Early childhood cancer significantly impacts a child's life.
  • Understanding long-term developmental outcomes is crucial for survivors.
  • Population-level data offers insights into cancer survivorship.

Purpose of the Study:

  • To investigate the impact of early childhood cancer on developmental outcomes.
  • To identify factors influencing developmental trajectories in childhood cancer survivors.
  • To assess the utility of administrative data for cancer outcome research.

Main Methods:

  • Retrospective linkage of South Australian Cancer Registry data with Australian Early Development Census (AEDC) data.
  • Inclusion of children diagnosed with malignant neoplasms before age 9.
  • Matched survivor-to-control design using five controls per survivor from the AEDC.

Main Results:

  • Childhood cancer survivors exhibited greater developmental vulnerability in physical health and wellbeing compared to controls.
  • No significant differences were found in social, emotional, language, cognitive, communication, or general knowledge domains.
  • Living in rural or remote areas was a protective factor for developmental outcomes, particularly physical health and wellbeing.

Conclusions:

  • Children diagnosed with early cancer may need targeted support for physical health and wellbeing.
  • Geographic variations in developmental outcomes, especially the protective effect of remoteness, warrant further investigation.
  • Administrative whole-population data is a feasible resource for studying cancer outcomes.
Abstract

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