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Related Concept Videos

Cystic Fibrosis: Management01:24

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Cystic fibrosis (CF) is an autosomal recessive disorder that predominantly affects individuals of Northern European descent, occurring at a rate of 1 in 3500. It is caused by a genetic mutation in a gene on chromosome 7, most commonly the ΔF508 mutation, that codes for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This results in thicker mucus secretions and obstruction pathologies in multiple organs, including the lungs and sinuses.
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Cystic fibrosis (CF), an autosomal recessive disorder, significantly affects the function of exocrine glands. This genetically inherited disease is characterized by the production of thick and sticky mucus, which can severely affect various organs and systems in the body.
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Updated: Dec 5, 2025

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Cystic Fibrosis: A Pocket Guide.

Mark Roughley1, Lawrie MacDougall2, Caroline Erolin3

  • 1Liverpool School of Art and Design, Liverpool John Moores University, Liverpool, UK.

Journal of Visual Communication in Medicine
|October 15, 2020
PubMed
Summary

A patient-centered iPad app for Cystic Fibrosis (CF) education was positively received by healthcare professionals and patients. This foundational tool evolved into an interactive pocket guide, demonstrating sustained utility over a decade.

Keywords:
Cystic fibrosisiBookiPadmedical artmedical illustrationpatient information

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Area of Science:

  • Medical Informatics
  • Digital Health Tools
  • Patient Education

Background:

  • The development of digital health tools for patient education has significantly advanced.
  • Cystic Fibrosis (CF) patient care benefits from accessible and engaging information resources.

Purpose of the Study:

  • To describe the design, development, and user feedback of an iPad application for Cystic Fibrosis (CF) patient education.
  • To evaluate the suitability and impact of the app and its subsequent variants for CF clinical nurse specialists and patients.
  • To reflect on the long-term utility of a digital CF patient guide.

Main Methods:

  • Development of an iPad application ('A Patient's Guide to Cystic Fibrosis') for CF clinical nurse specialists.
  • Gathering feedback from simulated patients and healthcare professionals (CF nurse specialists, respiratory consultants) on usability, content, and patient appropriateness.
  • Re-development into an Apple iBook and an Android app ('Cystic Fibrosis: A Pocket Guide') and continued use by specialist nurses.

Main Results:

  • The initial iPad app received positive feedback regarding its appearance, usability, content, and engagement through visual images, animations, and interactive elements.
  • The app was deemed suitable for CF patients, establishing a basis for advanced interactive learning tools.
  • Subsequent variants (iBook, Android app) have been utilized by specialist CF nurses for over ten years.

Conclusions:

  • Interactive digital tools are effective for patient education in Cystic Fibrosis care.
  • The sustained use of the 'Cystic Fibrosis: A Pocket Guide' highlights its value and adaptability.
  • Digital health applications can significantly enhance the patient review process and long-term patient engagement in chronic disease management.