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Group intervention for siblings and parents of children with chronic disorders (SIBS-RCT): study protocol for a

Krister W Fjermestad1, Wendy K Silverman2,3, Torun M Vatne4,5

  • 1Department of Psychology, University of Oslo, New Haven, Norway. kristefj@uio.no.

Trials
|October 15, 2020
PubMed

Insights

This study evaluates a group intervention for siblings and parents of children with neurodevelopmental disorders, aiming to improve family communication and sibling mental health. The SIBS-RCT trial will establish an evidence-based approach for this vulnerable population.

Area of Science:

  • Psychology
  • Family Studies
  • Clinical Psychology

Background:

  • Siblings and parents of children with neurodevelopmental disorders (NDDs) face increased risks of mental health issues and communication difficulties.
  • Existing group interventions for siblings lack clear parent components and evidence-based validation.

Purpose of the Study:

  • To evaluate the efficacy of a manual-based group intervention (SIBS-RCT) for siblings (aged 8-16) and parents of children with NDDs.
  • To improve parent-child communication, sibling mental health, quality of life, and family communication.

Main Methods:

  • A randomized controlled trial comparing the SIBS intervention to a 12-week waitlist control.
  • The intervention includes separate and joint sibling-parent sessions focusing on NDD understanding, emotions, and family challenges.
  • Primary outcome is sibling mental health, with secondary outcomes including quality of life and family communication, assessed electronically over 12 months.

Main Results:

  • The study aims to determine the difference between the intervention and waitlist groups at 12 weeks post-intervention.
  • Growth curve analyses will be used to examine outcomes over time.
  • The trial plans to recruit 288 sibling-parent dyads by the end of 2022.

Conclusions:

  • The SIBS-RCT trial is crucial for developing an evidence-based intervention for siblings of children with NDDs.
  • If no significant differences are found, the study will identify subgroups and effective components to iteratively refine the intervention manual.
  • This approach ensures the promotion of optimized interventions for improved outcomes.
Abstract

Keywords:
Family communicationGroup interventionMental healthNeurodevelopmental disordersRandomized controlled trialSiblingsStudy protocolYoung carers

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