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Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Personal perspectives: having a series of cardiac events
1From the Department of Surgery and Cancer, Imperial College London, St Mary's Hospital Campus, London W2 1NY, UK.
Insights
Medically qualified patients may face unique challenges navigating healthcare. This patient
Area of Science:
- Medical practice
- Patient experience
- Healthcare systems
Background:
- The patient is a medically qualified individual who underwent a prostatectomy.
- Post-surgery, the patient experienced severe complications including urethral bleeding, myocardial infarctions, and required coronary stenting.
- The patient's medical background influenced their perception of care received.
Purpose of the Study:
- To explore the patient's perspective on receiving medical care as a medically qualified individual.
- To highlight potential challenges and associations of being a medically qualified patient.
- To share insights on patient-physician interactions during complex medical events.
Main Methods:
- Personal narrative and reflection.
- Case report of a complex medical journey.
- Analysis of interactions with junior and senior medical staff.
Main Results:
- Junior doctors did not examine the patient at any point.
- Senior doctors expressed concern regarding stent placement risks in a bleeding patient.
- The patient felt largely passive yet remained an actively thinking observer of their care.
Conclusions:
- The experience of being a medically qualified patient can be complex, involving both passive reception and active cognitive engagement.
- Healthcare professionals' communication and actions are perceived differently by patients with medical knowledge.
- Further exploration is needed to understand the full spectrum of associations with being a medically qualified patient.
Abstract:
It has never been clear to me whether being a medically qualified patient has positive or negative associations. In 2019, after a prostatectomy, where I had extended bleeding per urethra, I suffered two myocardial infarctions, underwent three coronary angiograms and eventually coronary stenting. Junior doctors never examined me at any point, while senior ones worried over the risk of stent placement in an actively bleeding patient. I report my views on how this seemed as a largely passive, but still actively thinking patient.
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