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How the COVID-19 Pandemic Experience has Affected Pediatric Palliative Care in Mumbai
Pradnya Talawadekar1, Smriti Khanna2, Veronique Dinand2
1Department of Palliative Medicine, Tata Memorial Centre, Mumbai, Maharashtra, India.
Insights
The COVID-19 pandemic created challenges for children receiving palliative care in Mumbai, impacting access to medical care and essential supplies. This paper details unique solutions developed to support these vulnerable children and their families.
Area of Science:
- Pediatrics
- Palliative Care
- Public Health
Background:
- The COVID-19 pandemic significantly disrupted healthcare services for children requiring palliative care in Mumbai.
- Two hospitals initiated services recently and documented their experiences.
Purpose of the Study:
- To share the challenges faced by children and families under palliative care during the pandemic.
- To highlight innovative solutions implemented to overcome these obstacles.
Main Methods:
- Qualitative analysis of experiences from two palliative care services in Mumbai.
- Case-based documentation of difficulties and successful interventions.
Main Results:
- Difficulties included transportation for medical appointments and medications.
- Challenges also involved accessing doctors and medications in native places and securing essential rations.
- Logistical issues arose for families traveling between Mumbai and their hometowns.
Conclusions:
- Each family encountered unique challenges that required tailored solutions.
- The paper presents these innovative strategies for supporting pediatric palliative care patients during crises.
Introduction:
The COVID 19 pandemic has created difficulties for children registered under Children's Palliative Care in Mumbai. 2 hospitals who have started Services last year would like to share their experiences on difficulties faced by Children and their families and unique ways in which solutions were found to help them surmount all odds.
Results:
Some difficulties faced included transport to visit hospitals for doctor's care and essential medications; for those in native place, unavailability of doctors and medications. Difficulty to return home for those from out of Mumbai and vice versa. Unavailability of rations for those who were not original Mumbai residents.
Conclusions:
Unique solutions were found for each family. These are presented in this paper.
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