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Updated: Dec 3, 2025
11:35
The Multiple Sclerosis Performance Test MSPT: An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
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Long-term prognostic counselling in people with multiple sclerosis using an online analytical processing tool
Ricardo Kosch1, Insa Schiffmann2, Martin Daumer3
1Institute of Neuroimmunology and Multiple Sclerosis, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Multiple Sclerosis (Houndmills, Basingstoke, England)
|October 26, 2020
Summary
An online tool called EBDiMS provides personalized prognostic information for people with Multiple Sclerosis (pwMS). This evidence-based tool is feasible and well-received by patients, offering relevant insights without causing undue anxiety.
Area of Science:
- Neurology
- Medical Informatics
- Patient Counseling
Background:
- Prognostic counseling is crucial for Multiple Sclerosis (MS) patients due to the disease's unpredictable nature.
- Patients with MS (pwMS) actively seek information about their long-term prognosis.
- The Evidence-Based Decision Support Tool in Multiple Sclerosis (EBDiMS) offers personalized prognostic data using a large patient cohort.
Purpose of the Study:
- To assess the feasibility of using the EBDiMS tool for long-term prognostic counseling in pwMS.
- To evaluate the impact of EBDiMS-driven prognostic counseling on patients' understanding and decision-making.
Main Methods:
- Ninety consecutive pwMS received personalized prognostic estimations from EBDiMS.
- Estimations included time to reach Expanded Disability Status Scale (EDSS) scores of 6 and 8, and conversion to secondary-progressive MS.
- Patient-reported outcomes measured tool acceptability and compared pre- and post-counseling prognosis estimates.
Main Results:
- EBDiMS was rated as highly understandable, interesting, and relevant for patient-physician interactions and treatment decisions.
- Despite some initial worry, 95% of participants would recommend the tool.
- Personal prognosis estimates did not significantly change after using EBDiMS.
Conclusions:
- Long-term prognostic counseling via the EBDiMS online tool is feasible in a clinical setting.
- EBDiMS delivers valuable, accessible prognostic information to pwMS without inducing significant anxiety.
- The tool supports informed coping and therapy decisions for individuals with Multiple Sclerosis.
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