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Disparities and ethical considerations for children with tracheostomies during the COVID-19 pandemic

Lulia A Kana1, Andrew G Shuman1,2,3, Jennifer Helman2

  • 1University of Michigan Medical School, Ann Arbor, MI, USA.

Journal of Pediatric Rehabilitation Medicine
|October 26, 2020
PubMed

Insights

The COVID-19 pandemic worsened challenges for children with tracheostomies, especially in marginalized communities. Ethical issues include unequal access to care, resources, and rehabilitation services for these technology-dependent children.

Area of Science:

  • Pediatric Healthcare Ethics
  • Public Health Disparities
  • Technology-Dependent Children

Background:

  • The COVID-19 pandemic has amplified existing difficulties for children requiring tracheostomies and their families.
  • Long-term care for these children involves complex ethical considerations, particularly concerning access to essential services.

Discussion:

  • Ethical concerns include insufficient access to healthcare, limited resources, and inadequate rehabilitation services.
  • Racial and ethnic disparities disproportionately affect marginalized communities, leading to higher rates of chronic illness.
  • These disparities create significant barriers for technology-dependent children, including those with tracheostomies.

Key Insights:

  • The pandemic has highlighted and exacerbated inequities in healthcare access for vulnerable pediatric populations.
  • Children with tracheostomies, often technology-dependent, face compounded challenges due to systemic disparities.
  • Ethical discourse is crucial for addressing resource allocation and care access for this population.

Outlook:

  • Future research should focus on developing equitable healthcare models for technology-dependent children.
  • Policy interventions are needed to mitigate disparities in pediatric long-term care.
  • Strengthening support systems for families of children with tracheostomies is essential for improving outcomes.

Keywords:
COVID-19chronic disabilityethicspediatric tracheostomy

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