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Effects of Social Isolation and Loneliness in Children with Neurodevelopmental Disabilities: A Scoping Review
Celia Kwan1, Mojgan Gitimoghaddam1,2, Jean-Paul Collet1,2
1Department of Pediatrics, Faculty of Medicine, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.
Insights
Children with neurodevelopmental disabilities (NDD) experience significant loneliness, impacting their mental health and development. More research is needed to understand and address this issue in pediatric populations with NDD.
Area of Science:
- Pediatric Psychology
- Developmental Disabilities Research
- Social Health Studies
Background:
- Loneliness and social isolation negatively affect physical and mental health across all age groups.
- Children with neurodevelopmental disabilities (NDD) face higher rates of exclusion and loneliness compared to typically developing peers.
Purpose of the Study:
- To conduct a scoping review identifying studies on the effects of loneliness and social isolation in children with NDD.
- To determine the types of research conducted and the outcomes assessed in this population.
Main Methods:
- Searched three electronic databases (Ovid MEDLINE, EMBASE, PsychINFO) from inception to February 2019.
- Included 12 studies after screening 5768 citations; data extracted by two independent reviewers.
- Employed quantitative (frequency analysis) and qualitative (content analysis) methods.
Main Results:
- Ten of the included studies were case-control with cross-sectional designs, limiting inferential capabilities.
- Autism spectrum disorder, attention-deficit/hyperactivity disorder, and learning disorders were the most frequently studied NDDs.
- Loneliness in children with NDD is linked to adverse mental health, behavioral, and psychosocial/emotional outcomes, with potential long-term adult consequences.
Conclusions:
- The current research landscape suggests loneliness is underrecognized as a significant issue in children with NDD.
- Further prospective studies with larger sample sizes are crucial to understand the developmental trajectory of loneliness in this vulnerable group.
Abstract:
Loneliness and social isolation have negative consequences on physical and mental health in both adult and pediatric populations. Children with neurodevelopmental disabilities (NDD) are often excluded and experience more loneliness than their typically developing peers. This scoping review aims to identify the type of studies conducted in children with NDD to determine the effects of loneliness and/or social isolation. Three electronic databases (Ovid MEDLINE, EMBASE, PsychINFO) were searched from inception until 5 February 2019. Two independent reviewers screened the citations for inclusion and extracted data from the included articles. Quantitative (i.e., frequency analysis) and qualitative analyses (i.e., content analysis) were completed. From our search, 5768 citations were screened, 29 were read in full, and 12 were included. Ten were case-control comparisons with cross-sectional assessment of various outcomes, which limited inference. Autism spectrum disorder, attention-deficit/hyperactivity disorder, and learning disorder were the most commonly studied NDD. This review showed that loneliness among children with NDD was associated with negative consequences on mental health, behaviour, and psychosocial/emotional development, with a likely long-term impact in adulthood. Lack of research in this area suggests that loneliness is not yet considered a problem in children with NDD. More studies are warranted using prospective designs and a larger sample size with a focus on the dynamic aspect of loneliness development.
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