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Assessing clinical education tools for expanded carrier screening.

Chloe Dugger1, Hannah S Anderson2, Christine E Miller2

  • 1Graduate Program in Genetic Counseling, University of Utah, Salt Lake City, UT, USA.

Journal of Genetic Counseling
|November 2, 2020
PubMed
Summary

A comic-based educational tool significantly improved knowledge retention for expanded carrier screening (ECS) among pregnant women compared to brochures or videos. This suggests graphic narratives enhance understanding of complex genetic information.

Keywords:
carrier screeningcounseling techniquesdecision makingeducationgenetic counselingpopulation screening

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Area of Science:

  • Medical Genetics
  • Patient Education
  • Health Communication

Background:

  • Expanded carrier screening (ECS) is becoming more common, necessitating effective patient education strategies.
  • Educating a large volume of individuals undergoing ECS presents significant challenges.
  • Current educational methods may not be optimal for conveying complex genetic information.

Purpose of the Study:

  • To compare the effectiveness of three different educational tools (brochure, video, comic) for expanded carrier screening.
  • To assess the impact of these tools on participants' knowledge and decision-making preparedness.
  • To evaluate patient comprehension and engagement with genetic screening information.

Main Methods:

  • An online study randomized 151 pregnant women into three groups: brochure, video, or comic.
  • Participants received education on expanded carrier screening (ECS) using their assigned tool.
  • Knowledge scores and decision-making metrics were collected and analyzed.

Main Results:

  • The comic group demonstrated significantly higher knowledge scores compared to the video and brochure groups (p < .001).
  • No significant differences were found in preparation for decision-making, decisional conflict, or shared decision-making perceptions.
  • The comic format may enhance patient attention and information retention.

Conclusions:

  • Graphic narratives, such as comics, show promise for improving patient understanding of medical information.
  • Comic-based education may be a valuable tool for enhancing patient comprehension in expanded carrier screening.
  • Further research into visual and narrative-based health communication is warranted.