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Improving Cancer Data Interoperability: The Promise of the Minimal Common Oncology Data Elements (mCODE) Initiative
Travis J Osterman1, May Terry2, Robert S Miller3
1Departments of Biomedical Informatics and Medicine, Vanderbilt University Medical Center, Nashville, TN.
JCO Clinical Cancer Informatics
|November 2, 2020
Summary
The Minimal Common Oncology Data Elements (mCODE) project developed a consensus data standard to improve the sharing of cancer patient data. This standard facilitates interoperability and enhances cancer care delivery and research.
Area of Science:
- Oncology
- Health Informatics
- Data Standards
Background:
- Structured patient data in EHRs are increasing due to interoperability needs.
- Challenges persist in standardizing key oncology data elements like staging and biomarkers.
- The Minimal Common Oncology Data Elements (mCODE) project addresses these challenges.
Purpose of the Study:
- To develop a consensus data standard for facilitating the transmission of data for patients with cancer.
- To create an infrastructure for improved sharing of patient data in oncology.
- To enhance cancer care delivery and research through standardized data elements.
Main Methods:
- The mCODE project was developed by a workgroup including oncologists, informaticians, and standards experts.
- The mCODE specification is organized into 6 domains: patient, laboratory/vital, disease, genomics, treatment, and outcome.
- It comprises 23 profiles and 90 data elements, aligned with HL7 FHIR standards.
Main Results:
- The mCODE conceptual model was published for public comment in January 2019.
- The first public version (0.9.1) was presented in June 2019, followed by HL7 balloting and approval in September 2019.
- mCODE version 1.0 FHIR IG Standard for Trial Use was formally published on March 18, 2020.
Conclusions:
- The mCODE project offers significant potential benefits for cancer care and research.
- It provides an infrastructure to improve the sharing of patient data.
- Pilot implementations are in progress with a strong community of stakeholders.
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