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Consumers' Intentions to Adopt Blockchain-Based Personal Health Records and Data Sharing: Focus Group Study.

Chang Lu1, Danielle Batista2, Hoda Hamouda2

  • 1Blockchain@UBC, University of British Columbia, Vancouver, BC, Canada.

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Summary

Consumers are hesitant to adopt blockchain-based personal health records (PHRs) due to concerns about data security and access. Addressing these issues, like implementing private key recovery, could increase adoption of blockchain PHRs for health data sharing.

Keywords:
blockchainconsumers’ intentions to adoptfocus group studyhealth data sharingmicrointerlocutor analysispersonal health record

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Area of Science:

  • Health Informatics
  • Blockchain Technology
  • Consumer Health

Background:

  • Limited research exists on healthcare consumers' adoption intentions for blockchain-based personal health records (PHRs).
  • Current research predominantly focuses on the technical aspects of blockchain PHRs, neglecting user perspectives.

Purpose of the Study:

  • To investigate healthcare consumers' intentions and concerns regarding the adoption of blockchain-based PHRs and health data sharing.
  • To identify factors influencing consumer willingness to utilize blockchain for managing personal health information.

Main Methods:

  • Conducted three focus groups with 26 participants who reviewed a prototype of a self-sovereign blockchain PHR system.
  • Employed microinterlocutor analysis of focus group transcripts for descriptive overview.
  • Utilized NVivo 12.0 for coding participant responses and categorizing themes.

Main Results:

  • Participants showed limited increased willingness to own and share health data post-introduction to blockchain PHRs.
  • Key concerns included private key loss, access to care difficulties, and irreversible data access.
  • Participants favored systems with private key recovery, government-hosted health wallets, data use for collective good, non-monetary compensation, and revocable access.

Conclusions:

  • Healthcare consumers exhibit low inclination towards adopting blockchain-based PHRs and health data sharing.
  • Application design that addresses identified consumer concerns and recommendations can potentially enhance adoption rates.