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Overview of registries for anaphylaxis: a scoping review protocol
Samantha L Stiles1, Ingrid Roche2, Maria Said3,4
1The University of Western Australia, Perth, WA, Australia.
JBI Evidence Synthesis
|November 9, 2020
Summary
Global anaphylaxis registries are crucial for understanding and managing the increasing incidence of this severe allergic reaction. This review maps their features and research output to improve patient care and public health strategies.
Area of Science:
- Allergy and Immunology
- Public Health
- Data Science
Background:
- Anaphylaxis incidence is rising globally, necessitating structured reporting systems like patient registries.
- Registries are vital for understanding the burden of anaphylaxis and protecting at-risk populations.
Purpose of the Study:
- To map the scope and operational features of global anaphylaxis registries.
- To assess their research output and contribution to improving anaphylaxis knowledge and care.
Main Methods:
- Scoping review following JBI methodology.
- Searches of Embase, MEDLINE, Scopus, CINAHL, and gray literature.
- Contacting registry developers for additional information.
Main Results:
- Comprehensive description of global anaphylaxis registry scope and features.
- Analysis of research output to evaluate contributions to clinical practice and policy.
- Identification of areas for improvement in registry design and data utilization.
Conclusions:
- Global anaphylaxis registries are essential for advancing research and clinical practice.
- Standardized data collection and reporting are needed to maximize their impact.
- Further research is required to fully leverage registry data for public health initiatives.
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