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Understanding Young People and Their Care Providers' Perceptions and Experiences of Integrated Care Within a Tertiary

Hannah Johnson1, Megan Simons2,3, Dana Newcomb1,4

  • 1Integrated Care, Children's Health Queensland Hospital and Health Service, Level 9, Centre for Children's Health Research, South Brisbane QLD, AU.

International Journal of Integrated Care
|November 12, 2020
PubMed

Insights

Integrated care improves patient outcomes, but fragmented systems hinder its success for children with complex conditions. Addressing power imbalances and organizational structures is key to effective integrated care delivery.

Area of Science:

  • Healthcare Management
  • Pediatric Healthcare
  • Patient Experience

Background:

  • Integrated care offers improved health outcomes and patient satisfaction.
  • Fragmented care is common for children with chronic and complex conditions due to multiple providers.
  • This study explores integrated care experiences in a pediatric tertiary hospital.

Purpose of the Study:

  • To explore the experiences of integrated care from the perspectives of children, young people, parents, and healthcare providers.
  • To identify barriers and facilitators to successful integrated care implementation.
  • To inform strategies for enhancing integrated care in pediatric settings.

Main Methods:

  • Interpretive Phenomenological Analysis (IPA) approach.
  • Semi-structured interviews conducted with key stakeholders.
  • Analysis of verbatim interview transcripts.

Main Results:

  • Two primary themes emerged: 'agency and empowerment' and 'impact of organisational systems, supports and structures'.
  • These themes were consistent across interviews with children, young people, parents, and healthcare providers.
  • Nineteen interviews were completed and analyzed.

Conclusions:

  • Significant discrepancies exist between healthcare strategies, policies, and actual service delivery.
  • Organizational structures can be complex and inflexible, impacting integrated care.
  • Addressing power imbalances and strengthening family agency, including that of children and young people, is crucial for effective integrated care.
Abstract

Keywords:
family-centred carehealthcare providersintegrated carepaediatricspatient experienceperson-centred care

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