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Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S Weaver1, John Lantos2, Kelly Hauschild3

  • 1Children's Hospital and Medical Center Omaha, Division of Pediatric Palliative Care - Hand in Hand, Omaha, NE, USA.

Cardiology in the Young
|November 19, 2020
PubMed

Insights

Children with trisomy 18 were denied life-saving cardiac surgery. This case report advocates for individualized care, considering goals and comorbidities, for children with trisomy 13 or 18 undergoing cardiac interventions.

Area of Science:

  • Pediatric Cardiology
  • Clinical Genetics
  • Bioethics

Background:

  • Trisomy 13 and 18 are severe genetic disorders often associated with complex congenital heart defects.
  • Decisions regarding cardiac surgery for these children can be challenging and ethically complex.
  • Previous care experiences highlight disparities in access to surgical interventions.

Keywords:
Trisomy 13cardiologycommunicationpaediatric palliativetrisomy 18

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