Concordance in the recording of stroke across UK primary and secondary care datasets: a population-based cohort study

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Ann Morgan1, Sarah-Jo Sinnott2, Liam Smeeth2

  • 1Department of Occupational Medicine and Public Health, National Heart and Lung Institute, Imperial College London, London, UK a.morgan15@imperial.ac.uk.

BJGP Open
|November 25, 2020
PubMed

Insights

Linking primary care and hospital records significantly improves stroke data accuracy. This approach is crucial for time-sensitive research, enhancing the reliability of stroke event recording.

Area of Science:

  • Epidemiology
  • Health Informatics
  • Public Health

Background:

  • Acute health outcome recording in primary care databases can be suboptimal.
  • Previous studies indicate potential underrecording of conditions like myocardial infarction (MI).

Purpose of the Study:

  • To evaluate the completeness and accuracy of stroke event recording within UK primary care.
  • To compare stroke data between primary care records and hospital databases.

Main Methods:

  • A population-based longitudinal cohort study design was employed.
  • Stroke cases were identified using Clinical Practice Research Datalink (CPRD) and Hospital Episode Statistics (HES) data.
  • The overlap and accuracy of stroke recording between CPRD and HES were assessed.

Main Results:

  • Out of 75,674 total stroke events, 72.6% were in CPRD and 67.4% in HES.
  • Only 40% of strokes were recorded in both datasets within a 120-day window.
  • Stroke subtype accuracy was around 75% in CPRD compared to HES, with significant miscoding of ischaemic strokes.

Conclusions:

  • Linking primary care (CPRD) and hospital (HES) records enhances the completeness and accuracy of stroke data.
  • For time-sensitive research, utilizing linked CPRD data is strongly recommended over stand-alone records.
Abstract

Keywords:
Clinical Practice Research Datalinkelectronic health recordsprimary health carestroke

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