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Moral structuring of children during the process of obtaining informed consent in clinical and research settings
Anderson Díaz-Pérez1,2, Elkin Navarro Quiroz3, Dilia Esther Aparicio Marenco4
1Department of Social and Human Sciences, Simón Bolívar University, Barranquilla, Colombia. ander2711@gmail.com.
Insights
Informed consent practices shape children's moral development and autonomy in healthcare. Understanding deliberative and paternalistic models is key to ethical doctor-patient relationships for children with chronic diseases.
Area of Science:
- Pediatric Ethics
- Medical Sociology
Background:
- Informed consent is crucial for children's moral development and autonomy in doctor-patient relationships.
- Current discussions focus on children's rights and ethical treatment beyond clinician perceptions.
- Understanding clinician and researcher practices in obtaining informed consent from children with chronic diseases is essential.
Purpose of the Study:
- To describe influential practices in obtaining informed consent from children with chronic diseases.
- To explore the dynamics of doctor-patient relationships in pediatric chronic care.
- To analyze how clinician and researcher perspectives shape the informed consent process.
Main Methods:
- Qualitative, cross-sectional study employing a subjective and interpretivist approach.
- Semi-structured interviews conducted with 21 clinicians and researchers.
- Data analyzed using SPSS version 21® and Atlas Ti version 7.0®.
Main Results:
- The deliberative and paternalistic models significantly influenced physician-patient interactions.
- In the deliberative model, children are expected to possess moral awareness regarding their care.
- The paternalistic model viewed children as subjects requiring extreme care, promoting submission.
Conclusions:
- The differentiated objectification process acknowledges a child's internal and external factors.
- Informed consent serves as a vital tool for enhancing moral development and structuring children's understanding of their care.
- Ethical considerations in pediatric informed consent require a nuanced approach balancing autonomy and protection.
Background:
Informed consent is an important factor in a child's moral structure from which different types of doctor-patient relationships arise. Children's autonomy is currently under discussion in terms of their decent treatment, beyond what doctors and researchers perceive. To describe the influential practices that exist among clinicians and researchers toward children with chronic diseases during the process of obtaining informed consent.
Methods:
This was a cross-sectional, qualitative study via a subjective and interpretivist approach. The study was performed by conducting semi-structured interviews of 21 clinicians and researchers. Data analysis was performed using the SPSS version 21® and Atlas Ti version 7.0® programs.
Results:
The deliberative and paternalistic models were influential practices in the physician-patient relationship. In the deliberative model, the child is expected to have a moral awareness of their care. The paternalistic model determined that submission was a way of structuring the child because he or she is considered to be a subject of extreme care.
Conclusions:
The differentiated objectification [educational] process recognizes the internal and external elements of the child. Informed consent proved to be an appropriate means for strengthening moral and structuring the child.
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