Breaking the silence: Determining Prevalence and Understanding Stillbirth Stigma

Area of Science:

• Perinatal Health
• Psychological Impact of Stillbirth
• Social Stigma Research

Background:

• Previous Lancet series called for mechanisms to reduce stillbirth stigma.
• This research addresses the call by investigating stillbirth stigma experienced by bereaved mothers internationally.

Purpose of the Study:

• To determine the prevalence and types of stillbirth stigma experienced by bereaved mothers in high-income countries.
• To explore variables associated with higher levels of stillbirth stigma.

Main Methods:

• An international survey of 889 bereaved mothers was conducted.
• The Stillbirth Stigma Scale, Rosenberg Self-Esteem Scales, Perinatal Grief Scale, and Perceived Social Support Scale were utilized.
• Demographic information including mental health history was collected.

Main Results:

• A majority (54%) of bereaved mothers experienced stigma, with self-stigma being most prevalent (80%).
• Higher stigma scores were associated with first-time loss, poorer mental health, lower self-esteem, reduced social support, and increased grief.
• Discrimination and difficulties disclosing stillbirth were also reported.

Conclusions:

• This study is the first to quantify stillbirth stigma prevalence and associated factors in bereaved mothers.
• Findings indicate significant negative impacts on mental health, self-esteem, and grief.
• The research highlights the need for interventions to support bereaved mothers and reduce stigma.