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Considerations to Support Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures in

Elizabeth D Cox1, Sarah K Dobrozsi2, Christopher B Forrest3

  • 1Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, WI.

The Journal of Pediatrics
|December 3, 2020
PubMed

Insights

Challenges hinder the use of Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric measures in ambulatory care. Disseminating information on PROMIS integration is vital for improving children's health outcomes.

Area of Science:

  • Pediatric Health Outcomes
  • Health Services Research
  • Clinical Informatics

Background:

  • Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric measures are valuable tools for assessing children's health.
  • Implementation in ambulatory pediatric settings faces unique challenges.
  • Understanding these challenges is crucial for effective integration.

Purpose of the Study:

  • To identify challenges to using PROMIS Pediatric measures in ambulatory pediatric care.
  • To explore potential solutions for overcoming these implementation barriers.

Main Methods:

  • Conducted 18 semistructured telephone interviews with health system leaders, implementers, and clinicians.
  • Utilized applied thematic analysis with five coders to identify key themes in the interview data.

Main Results:

  • Six major themes emerged: measure selection, administration methods, parent proxy use, privacy, score interpretation, and clinical application.
  • Specific considerations for pediatric populations, including care transitions and privacy, were highlighted.
  • Many interviewees had leadership or implementation roles; a significant portion had clinical experience or were considering PROMIS use.

Conclusions:

  • Real-world challenges continue to impede the widespread adoption and effective use of PROMIS measures in pediatric care.
  • Continued dissemination of information regarding PROMIS integration into clinical workflows is essential for improving pediatric health outcomes.
Abstract

Keywords:
administrationclinical useconfidentialityfamily-centered careimplementationoutpatientpatient-centered carepatient-reported outcomesscoring

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