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Exploring Interactive Survivorship Care Plans to Support Breast Cancer Survivors: Protocol for a Randomized
Akshat Kapoor1, Priya Nambisan2
1Consumer Health Informatics Lab, Department of Health Services and Information Management, East Carolina University, Greenville, NC, United States.
JMIR Research Protocols
|December 4, 2020
Summary
This study tested an online survivorship care plan (SCP) to improve breast cancer survivors' knowledge and self-management. The pilot trial will inform a larger study on improving survivor outcomes and care.
Area of Science:
- Oncology
- Digital Health
- Survivorship Care
Background:
- Breast cancer is the most common cancer in American women, with many survivors experiencing unmet supportive care needs.
- Existing resources for breast cancer survivors lag behind treatment advancements, especially for low-income and minority populations.
- This study explores an online survivorship care plan (SCP) to enhance survivor support and self-management.
Purpose of the Study:
- To evaluate the feasibility of an online SCP (ACESO) for breast cancer survivors.
- To assess the impact of the online SCP on survivorship outcomes, including patient knowledge and self-management.
- To improve adherence to follow-up care and reduce treatment-related morbidity.
Main Methods:
- A 2-armed, randomized, waitlist-controlled pilot trial enrolling 50 breast cancer survivors.
- Mixed methods, including surveys and interviews, to assess the feasibility and user experience of the online SCP (ACESO).
- Comparison of outcomes between the intervention and control groups, measuring knowledge, self-efficacy, peer support, adherence, and morbidity.
Main Results:
- The online breast cancer survivorship plan, ACESO, has been developed and refined with input from experts and survivors.
- Institutional Review Board approval and an advisory board are in place for study oversight.
- The study is projected to be completed within 2 years.
Conclusions:
- This pilot study's findings will guide the design of a larger pragmatic trial.
- The research aims to evaluate the effectiveness of an online breast cancer SCP in improving self-management and reducing morbidity.
- Results will inform future interventions for breast cancer survivorship care.
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