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Paediatric tube-feeding: An agenda for care improvement and research

Nick Hopwood1,2, Khadeejah Moraby3, Ann Dadich4

  • 1School of International Studies and Education, University of Technology Sydney, Broadway, New South Wales, Australia.

Journal of Paediatrics and Child Health
|December 5, 2020
PubMed

Insights

This study outlines an agenda to enhance care for children with paediatric feeding disorder requiring tube feeding (PFD-T). Key priorities include data collection, addressing the feeding tube lifecycle, and minimizing disruption for families.

Area of Science:

  • Pediatric Gastroenterology
  • Child Health Research
  • Clinical Nutrition

Background:

  • Paediatric Feeding Disorder with Tube Feeding (PFD-T) significantly impacts child wellbeing.
  • Urgent improvements are needed in both clinical practice and research for PFD-T.
  • Current care and research lack a structured approach to PFD-T management.

Purpose of the Study:

  • To propose a comprehensive agenda for improving care and wellbeing in children with PFD-T.
  • To identify key priorities for research and clinical practice concerning PFD-T.
  • To advocate for family-centered principles in PFD-T management.

Main Methods:

  • Literature review and expert consensus to identify care gaps.
  • Development of a strategic agenda based on identified priorities.
  • Emphasis on integrating family involvement throughout the PFD-T care pathway.

Main Results:

  • An agenda focusing on routine data collection in healthcare records for PFD-T.
  • Strategies to address the entire tube-feeding lifecycle.
  • Methods to reduce the severity and duration of PFD-T-related disruptions.

Conclusions:

  • Implementing this agenda can significantly improve outcomes for children with PFD-T.
  • Routine data collection and a lifecycle approach are crucial for effective PFD-T management.
  • Family involvement, respect, and connection are fundamental to successful PFD-T care.

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