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Multiple Sclerosis Data Alliance - A global multi-stakeholder collaboration to scale-up real world data research
Liesbet M Peeters1, Tina Parciak2, Dipak Kalra3
1University MS Center, Biomedical Research Institute (BIOMED), Hasselt University, Agoralaan Building C, 3590 Diepenbeek, Belgium; Data Science Institute (DSI), Hasselt University, Agoralaan Building D, 3590, Diepenbeek, Belgium.
The Multiple Sclerosis Data Alliance (MSDA) addresses challenges in using real-world data (RWD) for multiple sclerosis (MS) research. They aim to create a patient-centered data ecosystem for improved MS care and treatment insights.
Area of Science:
- Neurology
- Data Science
- Health Informatics
Background:
- Real-world data (RWD) is increasingly vital for multiple sclerosis (MS) research, yet faces significant challenges in its generation, collection, and utilization.
- The Multiple Sclerosis Data Alliance (MSDA) is a global collaboration addressing these RWD complexities.
- Scaling up RWD for MS necessitates overcoming both sociological and technical hurdles.
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