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Evaluating a Standardized Transition of Care Process for Pediatric Inflammatory Bowel Disease Patients
Jennifer Lynne Shearer1, Sharon Perry2, Nicole Lidyard2
1School of Medicine, Case Western Reserve University, Cleveland, OH 44106, USA.
Insights
A health maintenance transition visit (HMV) improves readiness for adult care in pediatric inflammatory bowel disease (IBD) patients. The study also highlighted under-diagnosed depression impacting transition preparedness.
Area of Science:
- Pediatric Gastroenterology
- Transition Medicine
- Adolescent Health
Background:
- Lapses in care are common for pediatric inflammatory bowel disease (IBD) patients transitioning to adult care.
- A health maintenance transition visit (HMV) was developed to supplement standard medical care (SMV) and improve this transition.
- Assessing transition readiness is crucial for successful transfer to adult healthcare systems.
Purpose of the Study:
- To evaluate the effectiveness of the HMV in enhancing transition readiness among pediatric IBD patients.
- To identify factors influencing transition preparedness.
- To determine the prevalence of undiagnosed depression in this patient population.
Main Methods:
- Retrospective chart review of 140 pediatric IBD patients at a single center.
- Data collected included demographics, clinical data, Patient Health Questionnaire-9 (PHQ-9) for depression screening, and Transition Readiness Assessment Questionnaire (TRAQ) scores.
- Comparison of TRAQ scores between patients with and without prior HMVs.
Main Results:
- Patients who attended at least one prior HMV demonstrated significantly higher TRAQ scores (92 vs. 83, p < 0.05) compared to those attending their first HMV.
- 36% of patients without a prior depression diagnosis screened positive for depression.
- A significant relationship was found between disease status and PHQ-9 scores (p < 0.05).
Conclusions:
- A structured HMV significantly enhances transition readiness for pediatric IBD patients moving to adult care.
- The study identified a high rate of undiagnosed depression, suggesting it may negatively impact transition preparedness.
- Routine depression screening is essential for this vulnerable population.
Abstract:
To reduce lapses in care for pediatric inflammatory bowel disease (IBD) patients approaching adulthood, a health maintenance transition visit (HMV) was developed to supplement standard medical care (SMV). Our aim was to assess the effect of the HMV on transition readiness. A retrospective chart review was conducted at a single center with demographics and clinical data from HMV and SMV visits. Effectiveness of the HMV was assessed by the patient health questionanaire-9 (PHQ-9) and transition readiness assessment questionnaire (TRAQ) scores. A total of 140 patients, 80% Caucasian and 59% male completed an HMV. The mean age was 18 ± 2 years old, and 93% of patients reported inactive or mild disease. Patients who completed at least 1 prior HMV scored significantly higher on the TRAQ when transferring to adult care compared to patients transferred at their first HMV visit (92 vs. 83, p < 0.05). Of patients with no prior depression diagnosis, 36% had a positive screen for depression. A significant relationship was identified between disease status and PHQ-9 (p < 0.05). This study demonstrated a structured HMV increased transition readiness and quantified the significant under-diagnosis of depression in this population, emphasizing the importance of screening. These results indicate depression may affect patients' transition preparedness.
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