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Disruptions in the development of feeding for infants with congenital heart disease
Courtney E Jones1, Hema Desai2, Jennifer L Fogel3
1Acute Care Therapy Services, Primary Children's Hospital, Salt Lake City, UT, United States.
Insights
Congenital heart disease (CHD) impacts infant development, causing feeding difficulties that affect growth and bonding. Understanding these challenges is key to improving long-term quality of life for affected children.
Area of Science:
- Pediatrics
- Developmental Biology
- Cardiology
Background:
- Congenital heart disease (CHD) is the most common birth defect in the U.S., affecting ~36,000 infants annually.
- Improved survival rates lead to a growing adult population with CHD, necessitating focus on long-term development and quality of life.
- Infants with CHD face heightened risks of developmental and feeding challenges, impacting neurodevelopment, nutrition, and family bonding.
Purpose of the Study:
- To characterize feeding development disruptions in infants with congenital heart disease.
- To identify neurodevelopmental factors contributing to oral feeding difficulties in this population.
Main Methods:
- Literature review and synthesis of existing research on CHD, infant development, and feeding.
- Analysis of factors contributing to oral feeding challenges in infants with CHD.
Main Results:
- Feeding difficulties in CHD infants stem from medical issues, delayed feeding transitions, reduced stamina, and sensory/developmental delays.
- The intensive care unit (ICU) environment can exacerbate feeding and developmental challenges.
- These challenges profoundly affect short- and long-term neurodevelopment, growth, and social-emotional bonding.
Conclusions:
- Oral feeding difficulties are a significant concern for infants with CHD, impacting multiple facets of development.
- Addressing neurodevelopmental factors is crucial for optimizing feeding outcomes and quality of life for children with CHD.
- Further research is needed to develop targeted interventions for feeding challenges in this vulnerable population.
Abstract:
Congenital heart disease (CHD) is the most common birth defect for infants born in the United States, with approximately 36,000 affected infants born annually. While mortality rates for children with CHD have significantly declined, there is a growing population of individuals with CHD living into adulthood prompting the need to optimise long-term development and quality of life. For infants with CHD, pre- and post-surgery, there is an increased risk of developmental challenges and feeding difficulties. Feeding challenges carry profound implications for the quality of life for individuals with CHD and their families as they impact short- and long-term neurodevelopment related to growth and nutrition, sensory regulation, and social-emotional bonding with parents and other caregivers. Oral feeding challenges in children with CHD are often the result of medical complications, delayed transition to oral feeding, reduced stamina, oral feeding refusal, developmental delay, and consequences of the overwhelming intensive care unit (ICU) environment. This article aims to characterise the disruptions in feeding development for infants with CHD and describe neurodevelopmental factors that may contribute to short- and long-term oral feeding difficulties.
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