Show me what happens next: Preliminary efficacy of a remote play-based intervention for children with Prader-Willi

Anastasia Dimitropoulos1, Olena Zyga1, Ellen Doernberg1

  • 1Case Westerm Reserve University, Department of Psychological Sciences, United States.

Insights

Telehealth interventions show promise for improving cognitive and emotional skills in children with Prader-Willi Syndrome (PWS). This remote approach may overcome challenges in studying behavioral interventions for rare genetic disorders like PWS.

Area of Science:

  • Developmental Psychology
  • Clinical Psychology
  • Genetics

Background:

  • Prader-Willi Syndrome (PWS) is associated with impaired social and emotional functioning.
  • Recruiting sufficient participants for behavioral intervention studies in PWS is challenging due to the condition's low prevalence.
  • Telehealth offers a potential solution to overcome geographical barriers in PWS research.

Purpose of the Study:

  • To evaluate the preliminary efficacy of a telehealth-delivered behavioral intervention for children with Prader-Willi Syndrome (PWS).
  • To assess improvements in cognitive and affective processes through pretend play in children with PWS.

Main Methods:

  • A 6-week telehealth intervention was delivered to 15 children diagnosed with PWS, aged 6-12 years.
  • The study focused on remote delivery of behavioral strategies via telehealth.
  • Pretend play was utilized as a medium for intervention.

Main Results:

  • Children with PWS showed significant improvements in cognitive and affective processes related to pretend play.
  • Enhanced general cognitive flexibility was observed post-intervention.
  • Preliminary findings suggest telehealth is a viable method for delivering interventions in PWS.

Conclusions:

  • Telehealth interventions can effectively target cognitive and behavioral deficits in children with Prader-Willi Syndrome.
  • Pretend play, facilitated via telehealth, shows potential for promoting cognitive and behavioral change in PWS.
  • Further research with larger sample sizes and control groups is warranted to confirm these preliminary findings.

Related Concept Videos