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Living with advanced heart failure: A qualitative study

Caterina Checa1,2,3, Laura Medina-Perucha1, Miguel-Ángel Muñoz1,3,4

  • 1Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain.

Plos One
|December 14, 2020
PubMed

Insights

Patients with advanced heart failure (HF) experience poor communication and external locus of control. Tailored interventions considering gender differences and social support are crucial for managing HF.

Area of Science:

  • Cardiology
  • Qualitative Health Research
  • Patient Experience

Background:

  • Limited understanding of lived experiences in advanced heart failure (HF).
  • Need for holistic perspectives in primary care for HF patients.

Purpose of the Study:

  • To explore the experiences of advanced heart failure patients receiving home care.
  • To understand coping mechanisms and perceptions of disease management.

Main Methods:

  • Qualitative phenomenological study.
  • Twelve in-depth interviews with advanced HF patients (aged >65).
  • Analysis using Leventhal's framework.

Main Results:

  • Patients reported insufficient information and poor communication with healthcare professionals.
  • Gender differences in emotional representation and coping were observed.
  • External locus of control and reliance on social support were prominent.

Conclusions:

  • Advanced HF patients perceive external locus of control.
  • Healthcare interventions should incorporate gender-specific emotional support.
  • Enhanced communication and social support are vital for patient well-being.
Abstract

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