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Estimating the current and future prevalence of life-limiting conditions in children in England

Lorna K Fraser1, Deborah Gibson-Smith1, Stuart Jarvis1

  • 1Department of Health Sciences, Martin House Research Centre, University of York, York, UK.

Palliative Medicine
|December 16, 2020
PubMed

Insights

The number of children with life-limiting conditions in England has significantly increased, rising from 26.7 to 66.4 per 10,000 between 2001 and 2018. This trend is projected to continue, highlighting the growing need for pediatric palliative care services.

Area of Science:

  • Pediatric Health
  • Epidemiology
  • Palliative Care

Background:

  • Previous research indicated a growing need for pediatric palliative care services among children with life-limiting or life-threatening conditions.
  • The demand for specialized care for these children has been on an upward trajectory.

Purpose of the Study:

  • To determine the current prevalence of life-limiting conditions in children in England.
  • To forecast the future prevalence of this vulnerable population.

Main Methods:

  • An observational study utilizing national inpatient hospital data (Hospital Episodes Statistics) in England.
  • A population-based approach incorporating ethnic-specific population projections to estimate future prevalence.
  • Analysis included children aged 0-19 years with a life-limiting condition diagnostic code from 2000/01 to 2017/18.

Main Results:

  • Prevalence of life-limiting conditions in children rose from 26.7 to 66.4 per 10,000 between 2001/02 and 2017/18.
  • Highest prevalence was observed in infants under 1 year and children with congenital abnormalities.
  • Prevalence was notably higher in the most deprived groups and among children of Pakistani origin.
  • Future prevalence is predicted to range from 67.0 to 84.22 per 10,000 by 2030.

Conclusions:

  • The prevalence of life-limiting conditions in children in England has significantly increased over the past 17 years and is expected to rise further.
  • Enhanced data collection is crucial to accurately assess the complex health and social care requirements of these children.
  • This study underscores the escalating need for comprehensive pediatric palliative care support.
Abstract

Keywords:
Life-limiting conditionchildhospital episode statisticslife-threatening conditionpalliative carepediatrics

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