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Cleft Care Readability: Can Patients Access Helpful Online Resources?
J Roscoe Wasserburg1, Farah Sayegh1, Paymon Sanati-Mehrizy1
1Division of Plastic and Reconstructive Surgery, 5925Icahn School of Medicine at Mount Sinai, New York, NY, USA.
Summary
Online cleft care information is too complex for patients. Resources for cleft lip and palate exceed the recommended 7th-grade reading level, hindering health literacy.
Area of Science:
- Health Literacy
- Patient Education
- Cleft Care
Background:
- Online resources are crucial for patient education.
- Assessing the readability of online cleft care information is important for health literacy.
- The National Institutes of Health (NIH) and American Medical Association (AMA) recommend a 7th-grade reading level for patient materials.
Purpose of the Study:
- To identify and analyze online patient resources for cleft lip with or without cleft palate.
- To survey the online educational landscape for cleft care.
- To compare the readability of online resources to NIH and AMA recommendations.
Main Methods:
- Conducted internet searches using terms like "cleft palate" and "cleft lip."
- Collected and reviewed the first 50 links for each search term.
- Analyzed website content using 10 readability metrics, including Coleman-Liau and Flesch-Kincaid.
Main Results:
- No search term combinations yielded resources at the recommended mid-seventh grade level.
- Websites for "Cleft Palate" averaged a high school reading level.
- Websites for "Cleft Lip" averaged an eighth-grade reading level.
Conclusions:
- Online cleft care information is significantly above the recommended 7th-grade reading level.
- The complexity of this information hinders functional health literacy for patients.
- There is a need for more accessible patient education materials on cleft care.
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