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"Percorso Giacomo": An Italian Innovative Service of Perinatal Palliative Care
Chiara Locatelli1, Luigi Corvaglia1,2, Giuliana Simonazzi3
1Neonatal Intensive Care Unit, S.Orsola-Malpighi University Hospital, Bologna, Italy.
Insights
This article introduces "Giacomo's Pathway," an innovative perinatal palliative care program designed to enhance the quality of life for neonates with life-limiting conditions. The program emphasizes interdisciplinary teamwork and personalized family support.
Area of Science:
- Perinatal Medicine
- Palliative Care
- Neonatology
Background:
- Neonates with life-limiting conditions require specialized care focused on quality of life when curative treatment is not feasible.
- Existing care models may not adequately address the complex needs of these infants and their families.
- There is a need for integrated, compassionate care strategies in the perinatal period.
Purpose of the Study:
- To report the creation and key features of an innovative perinatal palliative care program, "Percorso Giacomo" (Giacomo's Pathway).
- To improve the quality of life for neonates with life-limiting conditions.
- To provide comprehensive support for families facing difficult perinatal decisions.
Main Methods:
- Establishment of an interdisciplinary team involving obstetrics, neonatology, and other specialists.
- Detailed fetal and neonatal diagnosis and prognosis.
- Open communication and engagement with families to align care goals with their desires.
- Development of personalized care plans addressing infant comfort and family support based on social, cultural, and religious backgrounds.
Main Results:
- Successful implementation of the "Percorso Giacomo" program at Sant'Orsola Hospital since 2013.
- Demonstrated interdisciplinary collaboration leading to comprehensive diagnostic and prognostic assessments.
- Effective family-centered communication and birthing plan development.
- Provision of personalized care tailored to individual infant and family needs.
Conclusions:
- The "Percorso Giacomo" program offers a successful model for perinatal palliative care.
- Interdisciplinary collaboration and family engagement are crucial for optimizing care for neonates with life-limiting conditions.
- Personalized care strategies significantly improve the quality of life for affected infants and their families.
Abstract:
The perspective proposed by this article will focus on perinatal palliative care as a strategy for improving the quality of life of neonates with life-limiting conditions when extending the patient's life is no longer the goal of care. This manuscript reports the creation of an innovative program of perinatal palliative care called "Percorso Giacomo" (Giacomo's Pathway) at Sant'Orsola Hospital in Bologna, Italy in 2013. Key features include interdisciplinary collaboration between professionals from obstetrics, neonatology and other specialties aiming to reach the most detailed fetal and neonatal diagnosis and prognosis; communication and engagement with the family to discuss goals of care and prepare a birthing plan that follows the family's desires and expectations; and personalized care to achieve comfort for each newborn and support for families according to their social, cultural, and religious backgrounds.
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