Multiple stigma among first-generation immigrants with epilepsy in Sweden

Area of Science:

• Medical Sociology
• Immigration Health
• Epilepsy Research

Background:

• First-generation immigrants with epilepsy face unique challenges related to stigma.
• Societal perceptions and personal experiences of stigma can profoundly affect mental health and social integration.

Purpose of the Study:

• To investigate the multifaceted meaning of stigma experienced by first-generation immigrants with epilepsy in Sweden.
• To understand how stigma influences self-perception, social support, and healthcare access in this population.

Main Methods:

• Conducted face-to-face interviews with 25 first-generation immigrants with epilepsy from diverse backgrounds.
• Employed a hermeneutic approach for systematic analysis of recorded and transcribed interview data.

Main Results:

• Stigma is linked to epilepsy, immigration status, and socioeconomic deprivation, impacting self-appreciation and confidence.
• Language barriers and lack of healthcare knowledge exacerbate seizure-related fears and hinder access to care.
• Social isolation is intensified by perceived stigma, leading to concealment of epilepsy and reduced societal participation; employment offers a path to self-confidence.

Conclusions:

• Multiple stigmas and healthcare access barriers increase seizure fears, isolation, and lack of support for immigrants with epilepsy.
• Employment is vital for building self-confidence and overcoming social isolation among immigrants with epilepsy.
• Understanding patient experiences of stigma is essential for healthcare professionals to provide targeted support and improve epilepsy management.