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Persons with dementia as internet users: what are their needs? A qualitative study
Angela Schnelli1, Julian Hirt1,2, Adelheid Zeller1
1Center for Dementia Care, Institute of Applied Nursing Sciences, Department of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.
This study explored how persons with dementia use online information, highlighting their needs for dementia content, design, and navigation. Tailoring internet resources is crucial for improving health literacy and support.
Area of Science:
- Gerontology
- Health Informatics
- Human-Computer Interaction
Background:
- Limited research exists on the internet information needs of individuals with dementia.
- The internet is an increasingly vital source for health information.
- Targeted online health information is essential for improving health literacy and shared decision-making in chronic conditions like dementia.
Purpose of the Study:
- To identify the needs and expectations of persons with dementia regarding online dementia-related information.
- To explore preferences for content, presentation, navigation, language, and design of internet resources for dementia.
Main Methods:
- A qualitative interview study was conducted between April 2019 and April 2020 in German-speaking Switzerland.
- Data from four interviews with five persons with dementia were analyzed using content analysis (Mayring).
- The COREQ checklist was utilized for reporting the study.
Main Results:
- Two primary themes emerged: 'use of media and changing needs' and 'information about dementia on the internet'.
- Findings indicate evolving user habits influenced by progressive dementia.
- Specific requirements for website design, content, critical reception, and information assessment were identified.
Conclusions:
- Online dementia information should be adapted to the disease's progression, including positive aspects and opportunities.
- Information presentation must be well-structured, and health professionals can assist individuals with dementia in navigating and interpreting online resources.
- Website developers should prioritize the specific needs of persons with dementia in design and content, ideally involving them in the development process.
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