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Leveraging Parent Pain Perspectives to Improve Pain Practices for Children with Medical Complexity
Brenna L Morse1, Richard W Serna2, McKenzie LaLumiere1
1Solomont School of Nursing, University of Massachusetts Lowell, Lowell, Massachusetts.
Summary
Parents are key to identifying and communicating pain in children with medical complexity (MC). Understanding their perspectives is crucial for improving pain management and caregiver collaboration.
Area of Science:
- Pediatric healthcare
- Pain management
- Qualitative research
Background:
- Children with medical complexity (MC) depend on others for pain recognition and management.
- Parents are vital proxy reporters of child pain behaviors.
Purpose of the Study:
- To understand parent perspectives on pain identification and communication in children with medical complexity (MC).
- To inform improved pain practices and caregiver collaboration.
Main Methods:
- Qualitative study utilizing individual interviews.
- Data collected through audio-recorded and transcribed interviews.
- Conventional and directed qualitative content analysis performed using NVIVO.
Main Results:
- Key themes identified: pain experiences, caregiver confidence, parent-caregiver partnership, proactive communication, and "they can hear us."
- Sub-themes of pain experiences included emotional pain and challenges in identifying pain sources.
Conclusions:
- Parents offer valuable insights into identifying and communicating their child's pain.
- Future research should focus on efficient information sharing and parent-caregiver partnerships for pain management in children with MC.
- Integrating pain conversations into initial assessments and utilizing tools like photos/videos can enhance care.
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