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[Roles and their dynamics in participatory research communities]
Susanne Kümpers1, Sven Brandes2, Birte Gebhardt2
1Fachbereich Pflege und Gesundheit, Hochschule Fulda, Leipziger Str. 123, 36037, Fulda, Deutschland. susanne.kuempers@pg.hs-fulda.de.
Participatory health research (PHR) transforms researcher and coresearcher roles, emphasizing trust and institutional ties. Joint reflection on role design is crucial for successful PHR cooperation and high-quality outcomes.
Area of Science:
- Public Health
- Social Sciences
- Health Services Research
Background:
- Participatory research approaches alter traditional researcher and coresearcher roles.
- Understanding role dynamics is essential for effective participatory health research (PHR).
Purpose of the Study:
- To explore how roles are perceived and enacted in PHR.
- To identify key dynamics for productive role development in collaborative health research.
Main Methods:
- Workshop report format detailing reflections and findings.
- Evaluation of several years of cooperation experiences from two subprojects within the PartKommPlus research consortium.
Main Results:
- Five key elements influencing role design were identified: institutional ties, role evolution over time, trust, information confidentiality, and the political nature of cooperation.
- Trust is significant for functional cooperative relationships.
- Information confidentiality poses challenges for scientific exploitation.
Conclusions:
- Joint reflection on role design is critical for the success and quality of participatory research cooperation.
- Shared attitudes and goals are presupposed by the political character of cooperation in PHR.
- Addressing institutional constraints and fostering trust are vital for effective role development.
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