Content analysis of identity challenges in patients with haemophilia: A qualitative study

Area of Science:

• Medical Sociology
• Psychology

Background:

• Inherited bleeding disorders like hemophilia significantly impact patients' education, employment, social engagement, and overall quality of life.
• These conditions can lead to profound challenges in self-identity, affecting various life domains.

Purpose of the Study:

• To explore and identify the specific sources of identity challenges experienced by patients with hemophilia.
• To understand the lived experiences of individuals with hemophilia concerning their self-perception and social integration.

Main Methods:

• A qualitative content analysis approach was employed for this research.
• Data were gathered through semi-structured, in-depth interviews with purposively selected hemophilia patients over a one-year period.
• Interviews were analyzed using the Granheme and Landman method to identify key themes.

Main Results:

• Key challenges contributing to identity disturbances included fear of rejection, loss of social roles, discrimination, and stigma.
• Marriage breakdown was also identified as a significant concern impacting patients' self-identity.
• Physical and social constraints imposed by hemophilia were found to be central to these identity challenges.

Conclusions:

• Healthcare providers, particularly nurses, should implement enhanced protective measures and support systems for hemophilia patients.
• Addressing the psychosocial aspects of hemophilia is essential for mitigating identity disturbances and improving patient well-being.
• Interventions should focus on reducing stigma and fostering social inclusion for individuals with inherited bleeding diseases.