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Experiences of general practice of children with complex and palliative care needs and their families: a qualitative

Sarah Mitchell1,2, Stephanie Harding2, Mohini Samani3

  • 1Oncology and Metabolism, The University of Sheffield, Sheffield, UK s.j.mitchell@sheffield.ac.uk.

BMJ Open
|January 7, 2021
PubMed

Insights

Children with life-limiting conditions and their families value general practice support, but poor experiences can lead to isolation. Improving primary care relationships can enhance holistic care and acute illness management.

Area of Science:

  • Pediatric Palliative Care
  • Qualitative Health Research
  • General Practice Services

Background:

  • Children with life-limiting and life-threatening conditions require integrated care involving multiple healthcare professionals.
  • General practice plays a crucial role in providing primary care services to these children and their families.
  • Understanding the experiences of children and families with general practice is essential for improving care delivery.

Purpose of the Study:

  • To investigate the views and experiences of children with life-limiting and life-threatening conditions and their families regarding general practice care.
  • To identify areas for improvement in primary care services for this population.

Main Methods:

  • Secondary thematic analysis of qualitative interview data from a serial interview study.
  • Involved 31 participants (10 children and 21 family members) from 14 families.
  • Data focused on experiences of primary care.

Main Results:

  • Three key themes emerged: poor experiences leading to isolation, value placed on general practice support, and practical ways general practice can provide care.
  • Children and families reported benefits from strong relationships with general practice for acute illness management, chronic disease care, medication reviews, and holistic support.

Conclusions:

  • Children with life-limiting and life-threatening conditions and their families value general practice involvement alongside specialist care.
  • There is a need to develop integrated systems of care to enhance the support provided by general practice.
Abstract

Keywords:
community child healthpaediatric palliative carepaediatricsprimary care

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