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Inconsistency in Brain Death Determination Should Not Be Tolerated
1Chief resident in neurology at Boston Medical Center and Boston University School of Medicine in Massachusetts.
AMA Journal of Ethics
|January 9, 2021
Summary
The Uniform Determination of Death Act (UDDA) provides legal grounds for determining death by neurological criteria. Inconsistent application of American Academy of Neurology guidelines for brain death diagnosis risks misdiagnosis and erodes public trust.
Area of Science:
- Neurology
- Medical Ethics
- Legal Medicine
Background:
- The Uniform Determination of Death Act (UDDA), established in 1980, forms the legal foundation for diagnosing death using neurological criteria.
- The UDDA permits the use of acceptable medical standards for death determination.
- Guidelines for brain death diagnosis were first published by the American Academy of Neurology (AAN) in 1995 and updated in 2010.
Purpose of the Study:
- To highlight the legal framework for determining death by neurological criteria.
- To examine the adherence to American Academy of Neurology guidelines for brain death determination.
- To underscore the importance of uniformity and accuracy in diagnosing death.
Main Methods:
- Review of the Uniform Determination of Death Act (UDDA).
- Analysis of the American Academy of Neurology (AAN) guidelines for brain death determination.
- Discussion of the implications of incomplete nationwide adherence to AAN guidelines.
Main Results:
- Nationwide adherence to the AAN's brain death determination guidelines has been incomplete since their inception.
- Variability in the application of diagnostic standards exists.
- Inconsistent practices may lead to misdiagnosis.
Conclusions:
- Incomplete adherence to established guidelines poses a risk to accurate death diagnosis.
- Variability in practice can undermine public trust in medical determinations of death.
- Physicians must collaborate to ensure uniformity and accuracy in diagnosing death by neurological criteria.

