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An Assessment of Health Information Resource Center and Supportive Program Needs
1Cancer Education and Information Service (Research and Data), National Cancer Centre Singapore, Singapore.
Asia-Pacific Journal of Oncology Nursing
|January 11, 2021
Summary
Patients and families need quiet spaces, educational materials, and support programs like nutrition talks and counseling. This information guides the development of a patient-centered Health Information Resource Center (HIRC).
Area of Science:
- Health Information Science
- Patient Support Services
- Resource Center Development
Background:
- No standardized tools exist to identify patient and family health information needs.
- Health Information Resource Centers (HIRCs) require user-centered planning.
- Assessing preferences is crucial for effective HIRC development.
Purpose of the Study:
- To assess the health information and resource preferences of patients and their families.
- To guide the planning and development of a Health Information Resource Center (HIRC).
- To inform the creation of a user-friendly, patient- and family-centric HIRC.
Main Methods:
- A needs assessment survey was conducted at the National Cancer Centre in Singapore.
- Data was collected from a convenience sample of 778 patients and family members.
- Surveys were administered at Specialist Oncology Clinics and the Ambulatory Treatment Unit.
Main Results:
- Top facility/resource preferences include quiet areas, information on services, and internet access.
- Key services needed are advice on resources and assistance from personnel.
- Written pamphlets, consumer health books, and supportive programs (nutrition, counseling, exercise) are highly desired.
Conclusions:
- Findings provide essential data for developing a patient- and family-centric HIRC.
- User preferences should guide the design of facilities, resources, and programs.
- This assessment supports the creation of an effective and responsive HIRC.
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