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Related Experiment Video

Updated: Nov 20, 2025

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
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Understanding Parents' Experiences When Caring for a Child With Functional Constipation: Interpretive Description

Alison P Thompson1, Shannon E MacDonald1, Eytan Wine2

  • 1Faculty of Nursing, University of Alberta, Edmonton, AB, Canada.

JMIR Pediatrics and Parenting
|January 20, 2021
PubMed
Summary
This summary is machine-generated.

Parents of children with pediatric functional constipation (FC) often feel unsupported and lack crucial information. Addressing these unmet needs is vital for improving care and developing better resources for families managing this common condition.

Keywords:
caregiverschildconstipationparentsqualitative research

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Area of Science:

  • Pediatrics
  • Gastroenterology
  • Child Health

Background:

  • Pediatric functional constipation (FC) is a prevalent and serious condition impacting children and families.
  • Despite its significance, FC is frequently undertreated, placing a substantial burden on parents managing care.
  • Understanding parental experiences is key to enhancing clinical support for pediatric FC.

Purpose of the Study:

  • To explore and articulate parents' lived experiences and information requirements when caring for a child with FC.
  • To gather evidence for developing a digital knowledge translation tool to support parents.
  • To improve the clinical care and management of pediatric functional constipation.

Main Methods:

  • Qualitative study employing interpretive description methodology.
  • In-depth, one-on-one interviews conducted in person or via web conferencing.
  • Concurrent data collection and analysis to ensure timely insights.

Main Results:

  • Four major themes emerged: parents feeling marginalized ('living in the shadows'), their concerns being dismissed ('not taken seriously'), facing information gaps and misinformation, and experiencing self-doubt and relationship strain.
  • A minor theme highlighted the positive impact of supportive influences on parental resilience and hope.
  • Parents reported significant unmet needs for both emotional support and practical information.

Conclusions:

  • Parents of children with FC have critical unmet needs for support and information.
  • Interventions should target clinicians, provide resources for parents, and adapt care models.
  • Addressing these needs can bridge gaps in current care provision for pediatric functional constipation.