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ICBT program for improving informal caregiver well-being: A qualitative study.

Ieva Biliunaite1, Austeja Dumarkaite2, Evaldas Kazlauskas2

  • 1Department of Behavioural Sciences and Learning, Department of Biomedical and Clinical Sciences, Linköping University, Campus Valla, SE-581 83 Linköping, Sweden.

Internet Interventions
|January 25, 2021
PubMed
Summary

Informal caregivers found internet-based cognitive behavioural therapy (ICBT) convenient and effective for improving well-being. Suggestions included adding live support and tailoring content for greater impact.

Keywords:
CBT, Cognitive Behavioural TherapyICBTICBT, Internet-delivered cognitive behaviour therapyInformal caregiversQualitativeThematic analysis

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Area of Science:

  • Mental Health
  • Psychology
  • Digital Health

Background:

  • Informal caregivers face significant psychological distress, including depression and anxiety.
  • Internet-based cognitive behavioural therapy (ICBT) shows promise for supporting this vulnerable population.
  • Qualitative research is crucial for understanding user experiences with ICBT.

Purpose of the Study:

  • To explore informal caregiver experiences with a transdiagnostic ICBT program.
  • To assess the acceptability and feasibility of ICBT for reducing caregiver burden.
  • To identify factors influencing the effectiveness of ICBT in improving quality of life.

Main Methods:

  • A strategic sampling procedure recruited 23 informal caregivers from a previous trial in Lithuania.
  • Semi-structured interviews were conducted via phone.
  • Thematic analysis was used to analyze interview data.

Main Results:

  • Four main themes emerged: program as a means of change, suggestions for improvement, driving personal/situational factors, and hindering situational factors.
  • Caregivers valued the convenience, applicability, and communication aspects of the ICBT program.
  • Key suggestions included incorporating live support and tailoring program content.

Conclusions:

  • Informal caregivers reported satisfaction with the ICBT program's format, materials, and therapist communication.
  • Personal and situational factors significantly impact caregiver well-being.
  • ICBT demonstrates potential for reducing caregiver burden and enhancing psychological health, warranting further research.