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Using routine databases to evaluate Electronic Palliative Care Co-ordination Systems (EPaCCS).

Christina Sian Chu1,2

  • 1Marie Curie Palliative Care Research Department, London, UK christina.chu@nhs.net.

BMJ Evidence-Based Medicine
|January 30, 2021
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Summary

Routine databases offer a cost-effective solution for generating rapid evidence on Electronic Palliative Care Co-ordination Systems (EPaCCS). This approach enhances palliative care research quality and supports the expansion of EPaCCS initiatives.

Keywords:
health services administration & managementpalliative carepublic healthstatistics & research methods

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Area of Science:

  • Health Services Research
  • Palliative Care Informatics
  • Health Data Science

Background:

  • Government initiatives aim to expand Electronic Palliative Care Co-ordination Systems (EPaCCS) nationwide by 2020.
  • Palliative and end-of-life care research is historically underfunded, creating a need for efficient evidence generation.
  • Routine healthcare databases present an accessible and cost-effective resource for research.

Purpose of the Study:

  • To establish the utility of routine databases for evaluating Electronic Palliative Care Co-ordination Systems (EPaCCS).
  • To address the current lack of high-quality evidence regarding EPaCCS effectiveness.
  • To demonstrate how routine data can support diverse research designs in palliative care.

Main Methods:

  • Utilizing existing routine healthcare databases for research purposes.
  • Integrating data from these databases into various study designs.
  • Exploring the potential for incorporating quality of life and patient-reported outcomes.

Main Results:

  • Routine databases can be effectively integrated into multiple study designs, including randomized controlled trials and quasi-experimental studies.
  • The use of routine data can expedite evidence generation for EPaCCS evaluations.
  • These databases hold potential for capturing patient-reported outcome measures and quality of life data.

Conclusions:

  • Routine databases provide a viable and high-quality resource for evaluating EPaCCS.
  • This methodology can overcome limitations in palliative care research funding.
  • Leveraging routine data supports the timely evidence generation needed for EPaCCS expansion.