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Designing a Personalized Health Dashboard: Interdisciplinary and Participatory Approach
Miriam Weijers1,2, Caroline Bastiaenen3, Frans Feron2
1Department of Preventive Child Health Care, Municipal Health Services, Southern Limburg, Heerlen, Netherlands.
Insights
A new 360° CHILD-profile dashboard visualizes child health data for Dutch Child Health Care (CHC) professionals and parents. This tool enhances personalized prevention by making complex health information easily accessible at a glance.
Area of Science:
- Child Health Care
- Digital Health
- Health Informatics
Background:
- Dutch Child Health Care (CHC) faces challenges in accessing and utilizing children's health data for personalized prevention.
- Digitalization of health data is achieved, but accessibility for CHC professionals, parents, and youth remains a significant barrier.
- A practical need arose from CHC practice to develop a method for at-a-glance information accessibility.
Purpose of the Study:
- To describe the development of an online dashboard, the 360° CHILD-profile.
- To demonstrate the application of a specific design model for visualizing comprehensive, theoretically structured health data.
- To create a tool that supports timely identification of children with emerging health issues linked to multiple determinants.
Main Methods:
- The development employed a nested design model within a real-life CHC context.
- Stakeholder involvement was integral throughout the four cascading design levels: Domain Problem and Data Characterization, Operation and Data Type Abstraction, Visual Encoding and Interaction Design, and Algorithm Design.
- The methodology included upstream validation during development and planned impact-oriented downstream validation post-prototype delivery.
Main Results:
- A user-friendly, online dashboard named the 360° CHILD-profile was successfully developed.
- The visualization is grounded in the International Classification of Functioning, Disability and Health (ICF) framework.
- The dashboard offers caregivers and parents/youth a holistic health perspective and identifies avenues for preventive, individualized health plans.
Conclusions:
- The described development process provides a practical guide for implementing the nested design model in healthcare settings.
- The 360° CHILD-profile serves as a valuable tool for enhancing personalized preventive care in Child Health Care.
- Effective visualization of health data is crucial for improving accessibility and supporting informed decision-making in pediatric healthcare.
Background:
Within the Dutch Child Health Care (CHC), an online tool (360° CHILD-profile) is designed to enhance prevention and transformation toward personalized health care. From a personalized preventive perspective, it is of fundamental importance to timely identify children with emerging health problems interrelated to multiple health determinants. While digitalization of children's health data is now realized, the accessibility of data remains a major challenge for CHC professionals, let alone for parents/youth. Therefore, the idea was initiated from CHC practice to develop a novel approach to make relevant information accessible at a glance.
Objective:
This paper describes the stepwise development of a dashboard, as an example of using a design model to achieve visualization of a comprehensive overview of theoretically structured health data.
Methods:
Developmental process is based on the nested design model with involvement of relevant stakeholders in a real-life context. This model considers immediate upstream validation within 4 cascading design levels: Domain Problem and Data Characterization, Operation and Data Type Abstraction, Visual Encoding and Interaction Design, and Algorithm Design. This model also includes impact-oriented downstream validation, which can be initiated after delivering the prototype.
Results:
A comprehensible 360° CHILD-profile is developed: an online accessible visualization of CHC data based on the theoretical concept of the International Classification of Functioning, Disability and Health. This dashboard provides caregivers and parents/youth with a holistic view on children's health and "entry points" for preventive, individualized health plans.
Conclusions:
Describing this developmental process offers guidance on how to utilize the nested design model within a health care context.
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