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Published on: September 19, 2019
Exploring parental perceptions of a family-centred model of care in a public child development service
Nicole L Argall1, Emma Johnson1, Elissa Cox1
1Child Development Service, 157842Townsville Hospital and Health Service, Australia.
Insights
Family-centred care (FCC) in Child Development Services (CDS) is valued by parents for communication and holistic approaches. However, families experienced stress due to unclear wait times and transitions.
Area of Science:
- Paediatric Allied Health
- Child Development Services
- Family-Centred Care
Background:
- Family-centred care (FCC) is a key principle in paediatric allied health.
- Limited evidence exists on implementing FCC in Child Development Services (CDS).
- This study addresses the gap in translating FCC theory into practical application within CDS.
Purpose of the Study:
- To describe and evaluate parent perceptions of a family-centred care model.
- To identify meaningful components of FCC from the consumer perspective.
- To explore practical strategies for delivering care within a family-centred framework in CDS.
Main Methods:
- A publicly funded Child Development Service (CDS) implemented a specific care pathway.
- 15 parents participated in semi-structured interviews and service satisfaction rating scales.
- Data were analyzed using thematic analysis and data triangulation for validity.
Main Results:
- Parents positively perceived the family-centred care model.
- Key valued components included communication, respect, partnership, and therapist skills.
- Benefits of a holistic approach and staffing continuity were identified; however, wait times and transitions caused stress.
Conclusions:
- The implemented family-centred care model is positively perceived by families.
- Communication, respect, partnership, and holistic care are crucial for effective FCC in CDS.
- Addressing uncertainties in wait list time frames and transition points is essential for reducing family stress.
Abstract:
Family-centred care (FCC) is recognised as a fundamental practice principle in the delivery of contemporary paediatric allied health care; however, limited evidence exists on how to translate FCC theory into practice for Child Development Services (CDS). This study describes and evaluates parent perceptions of a family-centred model of care at a publicly funded CDS where a care pathway consists of parent orientation-to-service session, integrated transdisciplinary allied health assessment, feedback and goal setting appointments. 15 participants completed a semi-structured in-depth interview and rating scales of service satisfaction. Interview data were audio recorded and transcribed verbatim. Thematic analysis and data triangulation were completed by three investigators to enhance validity and descriptive statistics were identified. The model of care was positively perceived by families, with participants identifying value in communication; fostering of respect and partnership and therapist skills. Service themes that influenced parents' perception of the model included benefits of a holistic approach to care and staffing continuity. Uncertainty of wait list time frames and transition/discharge points were identified as a source of stress by families. This research investigates what components of FCC are meaningful to consumers and considers practical ideas of delivering care within a family-centred framework.
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