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Measuring patient voice matters: setting the scene for patient-reported indicators
Katherine de Bienassis1, Solvejg Kristensen2, Emily Hewlett1
1Health Division, OECD, 2 Rue Andre Pascal, Paris 75016, France.
Patient-reported outcome measures (PROMs) and Patient-reported experience measures (PREMs) are crucial for assessing mental health care quality. International collaboration is needed to harmonize these measures for better benchmarking and improved patient-centered care.
Area of Science:
- Health Services Research
- Mental Health Policy
- Patient-Reported Outcomes
Background:
- People-centered healthcare necessitates patient perspectives on treatment success.
- Patient-reported outcome measures (PROMs) and Patient-reported experience measures (PREMs) offer valuable insights into healthcare quality.
- PROMs and PREMs are increasingly integrated into research, clinical practice, and policy development.
Purpose of the Study:
- To reflect ongoing discussions and findings from the OECD PaRIS Working Group on Patient-reported Indicators for Mental Health Care.
- To highlight the importance of patient-reported data in assessing mental health service quality.
- To explore challenges and best practices in collecting and utilizing PROMs and PREMs in mental health.
Main Methods:
- Analysis of ongoing discussions and findings from the OECD PaRIS Working Group.
- Review of existing OECD data on mental health care quality and outcomes.
- Examination of country-specific programs for collecting PROMs and PREMs in mental health settings.
Main Results:
- Limited data exists on how individuals with mental health conditions value services and their impact.
- As of 2018, only five surveyed OECD countries regularly reported PROMs and PREMs in mental health.
- Challenges in collecting and using PROMs/PREMs in mental health care were detailed, alongside country examples.
Conclusions:
- Internationally comparable measures are vital for assessing the quality and outcomes of mental health care due to its significant impact.
- International harmonization of PROMs and PREMs for mental health is essential.
- Coordinated efforts facilitate sharing national experiences, promoting PROM/PREM use, and enabling benchmarking.
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