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An integrated healthcare system (IHS) is a set of organizations that provides for or arranges to provide coordinated and continuous service to a defined population. The IHS takes responsibility for that particular population's health status and outcome, both clinically and fiscally. An integrated healthcare system is a well-organized, well-coordinated, and collaborative network. The integrated delivery system is a network that connects different healthcare providers to deliver organized,...
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Developing an Integrated Caregiver Patient-Portal System.

Margaret L Longacre1, Cynthia Keleher2, Marcin Chwistek3

  • 1Department of Public Health, College of Health Sciences, Arcadia University, Glenside, PA 19038, USA.

Healthcare (Basel, Switzerland)
|February 13, 2021
PubMed
Summary

This study developed an integrated patient-caregiver portal to connect patients, caregivers, and healthcare teams. Formative phases identified implementation barriers and user needs, guiding system improvements for better caregiver integration.

Keywords:
family caregiverspatient–caregiver–clinician communicationpolicyportal system

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Area of Science:

  • Health Informatics
  • Patient and Caregiver Support Systems
  • Digital Health Interventions

Background:

  • Integrating informal caregivers into healthcare is crucial for patient well-being.
  • Existing patient portals often lack robust caregiver support and communication features.
  • Effective caregiver involvement can improve patient outcomes and reduce healthcare burdens.

Purpose of the Study:

  • To report on the formative phases (I and II) of developing an integrated patient-caregiver portal system.
  • To identify potential implementation barriers and user needs prior to usability testing.
  • To refine system design based on pre-assessment and stakeholder feedback.

Main Methods:

  • Utilized the Non-Adaption, Abandonment, Scale-Up, Spread, and Sustainability (NASSS) framework for pre-assessment (Phase I).
  • Explored stakeholder reactions (patients and caregivers) to the portal concept (Phase II).
  • Collected feedback from 5 palliative oncology patient-caregiver dyads (N=10).

Main Results:

  • The NASSS framework identified potential barriers like non-uniform caregiving and portal use disparities.
  • Stakeholder feedback highlighted benefits of caregiver connection and voice, alongside concerns about patient portal use and need for assistance.
  • System adjustments included enhanced user guidance and consideration for multiple caregivers and email integration.

Conclusions:

  • The integrated patient-caregiver portal shows promise for enhancing caregiver involvement in healthcare.
  • Addressing identified barriers through iterative design is essential for successful implementation.
  • Future iterations should focus on multi-caregiver support and seamless interaction within the care team.