Readability, understandability, and quality of retinopathy of prematurity information on the web

Fatma Hilal Yılmaz1, Mahmut Sami Tutar2, Derya Arslan3

  • 1Department of Neonatology, Dr. Ali Kemal Belviranli Hospital for Obstetrics and Pediatrics, Konya, Turkey.

Birth Defects Research
|February 17, 2021
PubMed

Insights

Online information on retinopathy of prematurity (ROP) for parents has high understandability but poor readability and quality. Improving the written content on ROP websites is crucial for better patient education.

Area of Science:

  • Ophthalmology
  • Medical Informatics
  • Health Communication

Background:

  • Retinopathy of prematurity (ROP) is a significant cause of visual impairment in premature infants.
  • Parents rely on online resources for information about ROP, necessitating an evaluation of these materials.

Purpose of the Study:

  • To assess the readability, understandability, and information quality of online content regarding retinopathy of prematurity.
  • To identify areas for improvement in web-based patient education materials for ROP.

Main Methods:

  • A systematic search for "retinopathy of prematurity" was conducted on Google, identifying 220 websites.
  • Readability was assessed using multiple standardized scores (e.g., Flesch Reading Ease, Flesch-Kincaid Grade Level).
  • Understandability was measured using the Patient Education Materials Assessment Tool, and quality was evaluated using Health in Net code and JAMA benchmarks.

Main Results:

  • Sixty-four websites met the inclusion criteria.
  • Average readability scores indicated a high school reading level, with Flesch Reading Ease averaging 50.1.
  • While understandability scores were high (76.9 ± 15.2), the overall quality of information, assessed by JAMA benchmarks, was rated as poor (2.27 ± 1.14).

Conclusions:

  • Websites providing information on retinopathy of prematurity demonstrate high understandability for parents.
  • However, the readability and overall quality of the written content require significant improvement.
  • Enhancing online ROP resources is essential for effective parental comprehension and decision-making.
Abstract