Symptom Monitoring in Children With Life-Threatening Illness: A Feasibility Study Using mHealth

Jacqueline Vaughn1, Nirmish Shah, Sharron L Docherty

  • 1University of North Carolina School of Nursing, Chapel Hill (Dr Vaughn); Department of Hematology, Duke University School of Medicine, Durham, North Carolina (Dr Shah); and Duke University School of Nursing, Durham, North Carolina (Drs Docherty, Yang, and Shaw).

Insights

Mobile health devices show feasibility for monitoring symptoms in children with life-threatening illnesses. This technology can help visualize symptom patterns for improved management.

Area of Science:

  • Pediatric Oncology
  • Digital Health
  • Symptom Management

Background:

  • Children with life-threatening illnesses (C-LTI) often face significant symptom distress.
  • Effective symptom management is crucial for improving the quality of life for C-LTI.
  • Mobile technology presents a potential avenue for enhanced symptom data collection and management.

Purpose of the Study:

  • To explore the feasibility of using mobile health devices for monitoring and visualizing symptoms in C-LTI.
  • To assess patient engagement with mobile health technology for symptom tracking.

Main Methods:

  • A mixed-methods study was employed.
  • Two mobile health devices, including an Apple Watch, were utilized.
  • Participants engaged with the devices and a study app to record symptom data.

Main Results:

  • Feasibility was demonstrated for mobile technology in monitoring C-LTI symptoms.
  • Participant engagement rates were 56% for the Apple Watch and 63% for study app recordings.
  • The study successfully visualized symptom occurrences, patterns, and trajectories.

Conclusions:

  • Mobile health technology is a feasible tool for symptom monitoring in C-LTI.
  • Visualization of symptom data can provide valuable insights for clinical management.
  • Further exploration of mobile health applications can enhance care for C-LTI.