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Feasibility and Acceptability of a Telephone-Based Intervention for Hispanic Children to Promote Treatment Adherence
Nathalia Jimenez1, Molly Fuentes, Alyssa Virtue
1Departments of Anesthesiology and Pain Medicine (Dr Jimenez), Rehabilitation Medicine (Drs Fuentes and Apkon), Pediatrics (Drs Johnston and Rivara), Epidemiology (Dr Rivara), and Harborview Injury Prevention and Research Center (Drs Jimenez, Fuentes, and Rivara, Ms Virtue, and Mr Lopez), University of Washington, Seattle; Brain Injury Alliance of Washington, Seattle (Ms Crawley); and Center for Child Health, Behavior and Development, Seattle Children's Research Center, Seattle, Washington (Drs Jimenez, Fuentes, Zhou, and Rivara and Ms Alonso-Gonzalez).
Insights
A telephone-based program was feasible and acceptable for Hispanic parents of children with traumatic brain injury (TBI). The intervention improved parental self-efficacy and child function, supporting future trials.
Area of Science:
- Pediatric Neurotrauma
- Health Services Research
- Cultural Competence in Healthcare
Background:
- Traumatic brain injury (TBI) in children requires specialized care and support during transitions.
- Hispanic families face unique challenges in accessing and navigating healthcare services post-TBI.
- Existing support programs may not be culturally tailored to meet the needs of Hispanic parents.
Purpose of the Study:
- To evaluate the feasibility and acceptability of a telephone-based education and navigation program for Hispanic parents of children with TBI.
- To assess the program's impact on parental self-efficacy and child functional outcomes.
- To inform the design of future, larger-scale intervention studies.
Main Methods:
- Pilot prospective cohort study involving 14 Hispanic parent-child dyads.
- Telephone-based intervention focused on education and navigation support.
- Feasibility assessed via recruitment, retention, and adherence rates; acceptability via parent satisfaction and material use.
- Outcomes measured included parental self-efficacy, child functional status, and rehabilitation appointment adherence.
Main Results:
- High recruitment (82%) and retention (100% intervention completion, 85% 1-year follow-up) supported feasibility.
- Parents reported high satisfaction (90%) with the navigator and high use (92%) of educational materials, indicating acceptability.
- Significant improvements were observed in parental TBI caregiving self-efficacy and child functional measures (excluding communication skills).
- High adherence (92%) to follow-up rehabilitation appointments was noted.
Conclusions:
- A culturally relevant, telephone-based program is feasible and acceptable for supporting Hispanic families of children with TBI.
- The intervention shows promise in enhancing parental self-efficacy and improving child functional outcomes.
- Further research via a randomized controlled trial is recommended to establish efficacy for long-term adherence and functional recovery.
Objective:
To assess the feasibility and acceptability of a telephone-based education and navigation program for Hispanic parents of children hospitalized with traumatic brain injury (TBI).
Setting:
Level I trauma hospital and pediatric inpatient rehabilitation unit in the Northwestern United States.
Participants:
Fourteen Hispanic parent-child dyads. Parents were 85% female, with a mean age of 35 years. Children were 58% male, with a mean age of 9.7 years, and had been hospitalized for complicated mild/moderate (n = 5) or severe (n = 9) TBI.
Design:
Pilot prospective cohort design.
Main Measures:
Feasibility measures include recruitment, retention, and intervention adherence rates. Acceptability of intervention was measured by parents' use of educational materials and satisfaction with navigation program. We also evaluated study processes, including completion of baseline, 3, 6, and 12 months functional assessments of the child; assessment of parental health literacy and self-efficacy; and adherence to follow-up rehabilitation appointments.
Results:
Eighty-two percent of approached potential participants were recruited into the study. One hundred percent of participants completed the intervention, and 85% had 1-year follow-up. Intervention acceptability was high: 90% reported satisfaction with navigator, and 92% used the educational manual. Assessments demonstrated significant improvement in parents' TBI caregiving and community self-efficacy; 92% attendance to follow-up rehabilitation appointments; and improvement in the child's functional measures, except communication skills.
Conclusions:
Findings support feasibility and acceptability of a culturally relevant program to facilitate transitions of care for Hispanic children with TBI. A future randomized trial is warranted to determine the efficacy of the intervention on long-term treatment adherence and the child's post-TBI function.
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