Feasibility and Acceptability of a Telephone-Based Intervention for Hispanic Children to Promote Treatment Adherence

Nathalia Jimenez1, Molly Fuentes, Alyssa Virtue

  • 1Departments of Anesthesiology and Pain Medicine (Dr Jimenez), Rehabilitation Medicine (Drs Fuentes and Apkon), Pediatrics (Drs Johnston and Rivara), Epidemiology (Dr Rivara), and Harborview Injury Prevention and Research Center (Drs Jimenez, Fuentes, and Rivara, Ms Virtue, and Mr Lopez), University of Washington, Seattle; Brain Injury Alliance of Washington, Seattle (Ms Crawley); and Center for Child Health, Behavior and Development, Seattle Children's Research Center, Seattle, Washington (Drs Jimenez, Fuentes, Zhou, and Rivara and Ms Alonso-Gonzalez).

Insights

A telephone-based program was feasible and acceptable for Hispanic parents of children with traumatic brain injury (TBI). The intervention improved parental self-efficacy and child function, supporting future trials.

Area of Science:

  • Pediatric Neurotrauma
  • Health Services Research
  • Cultural Competence in Healthcare

Background:

  • Traumatic brain injury (TBI) in children requires specialized care and support during transitions.
  • Hispanic families face unique challenges in accessing and navigating healthcare services post-TBI.
  • Existing support programs may not be culturally tailored to meet the needs of Hispanic parents.

Purpose of the Study:

  • To evaluate the feasibility and acceptability of a telephone-based education and navigation program for Hispanic parents of children with TBI.
  • To assess the program's impact on parental self-efficacy and child functional outcomes.
  • To inform the design of future, larger-scale intervention studies.

Main Methods:

  • Pilot prospective cohort study involving 14 Hispanic parent-child dyads.
  • Telephone-based intervention focused on education and navigation support.
  • Feasibility assessed via recruitment, retention, and adherence rates; acceptability via parent satisfaction and material use.
  • Outcomes measured included parental self-efficacy, child functional status, and rehabilitation appointment adherence.

Main Results:

  • High recruitment (82%) and retention (100% intervention completion, 85% 1-year follow-up) supported feasibility.
  • Parents reported high satisfaction (90%) with the navigator and high use (92%) of educational materials, indicating acceptability.
  • Significant improvements were observed in parental TBI caregiving self-efficacy and child functional measures (excluding communication skills).
  • High adherence (92%) to follow-up rehabilitation appointments was noted.

Conclusions:

  • A culturally relevant, telephone-based program is feasible and acceptable for supporting Hispanic families of children with TBI.
  • The intervention shows promise in enhancing parental self-efficacy and improving child functional outcomes.
  • Further research via a randomized controlled trial is recommended to establish efficacy for long-term adherence and functional recovery.
Abstract

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