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Being a Patient Representative Is More Work Than Being a Patient Advocate-Done Right, It Is Also Likely to Be More
1Department of Cellular and Physiological Sciences, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.
Abstract:
For a patient to be effective as a "patient representative" within a health-related organization, work and more than just accepting an honorific title is required. I argue that for a patient to be most effective as a patient representative requires different types of background knowledge and commitment than being a "patient advocate". Patients need to be cautious about how, when, and where they take on an official role of either an "advocate" or "representative", if they truly want to be a positive influence on health outcomes.
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